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From the Desk

A Xmas message from the MDA Executive Director Boris M Struk

Only a few days now until Santa places presents under the trees, delicious meals are shared in abundance and we have a chance to relax and reflect on a year that was. This is definitely a special time of year with Christmas spirit in the air and an opportunity for many to catch up with those in their lives who, for the most part of the year, a busy life gets in the way of seeing. It is important to take stock at this time of year and give yourself a moment to contemplate all that has occurred over the last 12 months.

(22 December 2014)Read more...

Research News

Research Round-up 2014 – other muscular dystrophies and neuromuscular conditions

In the run up to Christmas we are publishing summaries of the progress made this year towards treatments for muscular dystrophies and related neuromuscular conditions. Muscular Dystrophy Australia supports people with any one of more than 60 neuromuscular conditions. We have already published updates for some of the more common conditions and this week we have the research highlights for the other conditions we cover.

(15 December 2014)Read more...

MDA Harley Raffle No. 57 Winner

MDA Harley Raffle No. 57 Winner

G. Morton

Port Lincoln SA Australia

Ticket No. 8983

(15 December 2014)Read more...

MEDIA CLIP: MDA interviewed on ABC News24 - Afternoon Show

Muscular Dystrophy Australia's Executive Director Boris M Struk was interviewed on Monday 8 December 2014 on ABC News24's Afternoon Program with Kim Landers and Tony Eastley in regards to the sad passing of disability advocate Stella Young.

You can view the video clip by clicking on the 'Read more' link...

(10 December 2014)Read more...

Media Release

Charity boss saddened by death of disability advocate Stella Young

“On behalf of myself and the Muscular Dystrophy community I offer our deepest sympathy to the family and friends of Stella Young who unexpectedly passed away on Saturday evening at the age of 32,” said Muscular Dystrophy Australia’s Executive Director, Boris M Struk.

“Stella was a truly brilliant woman who was such a strong advocate for the disability sector and her strength rang not from a victim mentality but as someone who wanted equality for the disability community rather than special treatment,” said Mr Struk.

The family of Young recently advised of her passing via a public statement. Young was born with Osteogenesis imperfecta, which is commonly known as brittle bone disease.

“Her sentiment of wanting a fair go for those living with a disability teamed with her quick wit and smart humour made her a formidable, and well respected, voice within the community,” said Mr Struk... [CONTINUES]

To download the full media release click on the 'Read more' link...

(08 December 2014)Read more...

Research News

Research Round-up 2014 - SMA and ALS

In the run up to Christmas we are publishing summaries of the progress made this year towards treatments for muscular dystrophies and related neuromuscular conditions. This week we focus on the conditions that affect the motor neurons – spinal muscular atrophy (SMA) and amyotrophic lateral sclerosis (ALS, also known as motor neurone disease or Lou Gehrig's disease).

(04 December 2014)Read more...

Moonee Valley Leader paper: The place where men become boys

REVHEADS and car enthusiasts can get their motors running at the inaugural Big Boys Toys Car Show.

All proceeds from the Essendon Fields event will support Muscular Dystrophy Australia, with patrons expected to flock to the fundraiser to view display cars, including a police sheriff’s car, an old-time fire engine and the Batmobile.

Executive director Boris Struk said the show would turn “even the most hardened car buffs into boys”... [CONTINUES]

To view the full article click on the 'Read more' link...

(03 December 2014)Read more...

Media Release

Today we celebrate International Day of People with Disability

“Today is ‘International Day of People with Disability’ and we at Muscular Dystrophy Australia are very proud to celebrate our members, as well as the wider disability community,” said Muscular Dystrophy Australia Executive Director, Boris M Struk.

“Our members wish not to be described as heroic or brave for simply living with a disability, rather they would like people to simply see past their physical or mental differences and appreciate what they choose to do with their lives,” said Mr Struk.

Muscular Dystrophy is a progressive muscle-wasting disorder and people with the advanced stages of MD may need to rely on a wheelchair for mobility and a ventilator to assist with breathing for without this vital equipment they would not survive... [CONTINUES]

To download the full media release click on the 'Read more' link...

(03 December 2014)Read more...

MDA's inaugural Big Boys Toys Car Show is on this Sunday!

For the first time ever, MDA is hosting a fundraising car show at Essendon Fields this Sunday 7 December.

Entry is $5 and $25 to display a car. Open from 9am - 5pm.

We hope to see you all there supporting the MD community!

Click on the 'Read more' link to visit the event website...

(01 December 2014)Read more...

Special Offer

MD Community

(27 November 2014)Read more...

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Muscular Dystrophy Limited
111 Boundary Road North Melbourne VIC 3051
Australia

Phone +61 3 9320 9555
Fax+61 3 9320 9595

ACN 122 847 161

Muscular Dystrophy Association Inc
111 Boundary Road North Melbourne VIC 3051
Australia

Phone +61 3 9320 9555
Fax+61 3 9320 9595

ABN & DGR 33 376 893 530 Assoc Reg No. A 14397Z

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