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From the Desk

 A new message from the MDA Executive Director Boris M Struk

... All these years on and it is sometimes hard to fathom how far MDA has come in helping the national MD community. We provide research, care, services and programs to families with a member affected by the disorder from the second they receive the diagnosis, something I so desperately yearned for my own family all those years ago.

(08 October 2014)Read more...

Special Offer

MD Community

(27 November 2014)Read more...

Media Release

Disability organisation welcomes inquiry to clean up sector

“Muscular Dystrophy Australia fully supports the Victorian Government and Opposition’s pledge to hold an inquiry into the state's disability sector, amid allegations one of Australia's biggest disability providers failed to act on warnings about sexual abuse on clients,” said Muscular Dystrophy Australia’s Executive Director, Boris M Struk.

“As the head of national disability organisation I welcome attention being placed on our sector to help rid it of any misconduct or inefficiencies that may have invaded some organisations,” said Mr Struk.

Muscular Dystrophy Australia provides care, services and research to the 1 in 1,000 people affected by MD and is also an advocate for both its members and the wider disability community.

The Board of Yooralla announced today that it had accepted the resignation of CEO Sanjib Roy effective from Sunday 23 November 2014, after Roy headed the organisation for more than six years... [CONTINUES]

To download the full media release click on the 'Read more' link...

(24 November 2014)Read more...

Research News

Research Round-up 2014 – Duchenne and Becker MDs

Over the coming weeks we will be publishing summaries of the progress made this year towards treatments for muscular dystrophies and related neuromuscular conditions. First up are Duchenne and Becker MDs which are trailblazing the way forward.

(21 November 2014)Read more...

Media Release

Big Boys supporting little boys in a charity car show: Sun 7 Dec 14

The first Sunday in December will see revheads and car enthusiasts flock from all around Victoria to Essendon Fields to take part in the inaugural Big Boys Toys Car Show which is set to be a spectacular event, with proceeds supporting a much needed cause - Muscular Dystrophy (MD).

“This is truly an event which will turn even the most hardened car buffs into boys - like kids on Christmas morning with so many shiny toys to admire and explore,” said MDA Executive Director, Boris M Struk.

The event being held on 7 December 2014 is hosted by Muscular Dystrophy Australia and supported by Middy’s - Electrical & Data Supplies Wholesaler, with all proceeds going to support care, programs and research for the Muscular Dystrophy community... [CONTINUES]

To download the full Media Release click on the 'Read more' link...

(17 November 2014)Read more...

 

Thank you to our young MDA fundraising superstar Connor Hall, 16

Muscular Dystrophy Australia would like to send out a huge congratulations and thank you to our newest fundraiser Connor Hall, aged 16, from Bendigo VIC. Connor has Duchenne Muscular Dystrophy and decided to run a fundraising lolly competition at this school from his own initiative to raise money for MDA.

He sat at his school canteen at Weeroona College, Bendigo, for over a week giving up his lunch break to collect guesses and donations. He was able to raise a very impressive $120.

We are so proud of Connor and really appreciate his thought and effort that went into helping raise money for care, research and programs for the MD community.

To check out photos of Connor receiving a MDA Certificate of Appreciation in front of his school last week click on the 'Read more' link...

(13 November 2014)Read more...

2015 MDA Run for Strength - Registrations Open Now!

Save the date: Sunday 15 February 2015

CLICK HERE TO REGISTER

Next year's MDA Run for Strength Fun Run will be the biggest and best Muscular Dystrophy Australia (MDA) has ever hosted and you can sign up now to take part.

DATE: Sunday 15 February 2015

TIME: From 8am (Fun Run begins at 9am)

LOCATION: Albert Park Lake, Melbourne

COST: Under 14's free, $30 Registration Only or $45 Registration PLUS Event T-shirt/Singlet

CELEBRITY HOST: The event will be emceed by well-known TV Reporter - Kristy Mayr

If you have any questions please feel free to call MDA directly on (03) 9320 9555.

To download the event flyer click on the 'Read more' link...

(11 November 2014)Read more...

Publicity


Check out all of MDA's publicity, media releases and coverage

You can view all of MDA's publicity and media coverage by visiting the MDA Publicity Page by clicking here.

To view or download any of MDA's media releases you can visit the Media Releases Page by clicking here.

(15 October 2014)Read more...

Media Release

MDA boss is finalist in Victorian Senior Australian of the Year Award

Muscular Dystrophy Australia (MDA) is proud to announce that the MDA Executive Director, Boris M Struk, has been chosen as a finalist in the Victorian Senior Australian of the Year Award.

There are four finalists in this division and Mr Struk has been chosen alongside three academics with the other finalists comprising of a Neurologist, a Microbiologist and a Bioinformatician.

“It is an absolute honour to be one of four candidates competing for this prestigious award and I am privileged to be chosen in contention with such high calibre finalists in my category, as well as all whom were nominated,” said Mr Struk. [CONTINUES]

To download the full media release click on the 'Read more' link...

 

(08 October 2014)Read more...

Research News

Phase 3 Duchenne MD clinical trial starts recruitment

Sarepta Therapeutics has started recruiting for its phase 3 clinical trial of exon skipping drug ‘eteplirsen’ in the USA. This drug has the potential to treat around 13 percent of boys with Duchenne muscular dystrophy (MD) — those with a particular genetic change (or mutation). It is designed to correct mutations located near exon 51 of the dystrophin gene.

(07 October 2014)Read more...

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Muscular Dystrophy Limited
111 Boundary Road North Melbourne VIC 3051
Australia

Phone +61 3 9320 9555
Fax+61 3 9320 9595

ACN 122 847 161

Muscular Dystrophy Association Inc
111 Boundary Road North Melbourne VIC 3051
Australia

Phone +61 3 9320 9555
Fax+61 3 9320 9595

ABN & DGR 33 376 893 530 Assoc Reg No. A 14397Z

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