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From the Desk

A message from MDA's Executive Director...

What an amazing event this year’s MDA Run for Strength was on Sunday! I would have to say it was our most enjoyable fun run held to date with a crowd of more than 1,000 people and so far we have raised close to $30,000. The weather was perfect with bright sunny skies and the crowd was in fantastic form with an abundance of happy smiling faces and laughs shared.

There were hundreds of superheroes zooming along the track and it was great to see so many of our MD community taking part. You can check out some of the event photos on our Facebook page here... [CONTINUES]

To view the full 'From the Desk' article click on the 'Read more' link...

(17 February 2015)

Delays in MD diagnosis

Study finds parents frustrated with delays in MD diagnosis

A study supported by Muscular Dystrophy Australia has found that children with Duchenne MD are diagnosed at the age of five on average, but parents express concern about symptoms several years earlier. This delay is often stressful for families, impedes early access to treatment and increases the risk of having a second affected child...

(28 April 2015)

Castlemaine Mail newspaper (front page): Zombies in Maldon

Maldon's Bluelight Youth Camp was a hive of activity last week when more than 50 people attended a camp for children with Muscular Dystrophy.

Muscular Dystrophy Australia hosted the five-day camp, which included a range of fun activities for the children and their carers such as a scary night time story telling by the fire, a range of arts and crafts and a fun Harry Potter night... [CONTINUES]

To read the full article click on the 'Read more' link...

(24 April 2015)

Research Update

New IVF technique helps family with MD

The first baby has been born in Europe as the result of a new IVF procedure that checks embryos for genetic disorders. The baby was at risk of inheriting Charcot-Marie-Tooth disease (CMT), a neuromuscular condition which falls under the umbrella of muscular dystrophy.

(20 April 2015)

Respiratory Update

Ventilator Factsheet

Starting on ventilation is often a daunting transition for people with muscle disease. However, once you have settled into the new routine of ventilation you will find that you feel healthier and have more energy, so all of the hard work to make it comfortable will be worth it in the end. Starting ventilation promptly when it is needed may also help to avoid potential problems down the track with the heart and general health.

(20 April 2015)

Thank you to the Unusual Suspects band for supporting MD

MDA would like to extend a huge thank you to our wonderful supporters the ‘Unusual Suspects’ band who raised money for MD over the Easter break. We very much appreciate all of the effort and time you gave to the cause. Well done!

Excerpt from the band: “Over Easter in Yarram the ‘Tarra Festival’ is held and a big inflow of visitors to our town happens. On Saturday 4 April the ‘Unusual Suspects’ did some busking in aid of Muscular Dystrophy. The sum of $500 was raised in support of MD. Brian Field who is playing the fiddle in the photo is the grandfather of Nathan Travers, who is the inspiration to support MD.”

Media Release

National charity wins Compassionate Employer Award

Tomorrow, Friday 13 March, Muscular Dystrophy Australia (MDA) will be receiving the ‘2015 Compassionate Employer Recognition Award’ at Parliament House, Melbourne, presented by Compassionate Friends Victoria Inc. to acknowledge its exceptional care provided to employees in difficult personal times.

The award aims to demonstrate best workplace practices in dealing with bereavement, to encourage the adoption of these practices in other workplaces and educate business and community about the impacts of the death of a loved one.

This award specifically pertains to the compassion shown to MDA’s Client Services Manager, Maria Kouppas, around the time of her mother’s passing in 2013...[CONTINUES]

To download the full Media Release click on the 'Read more' link...

(12 March 2015)

Big Boys Toys car show raised not only funding but also awareness

Last Sunday, 8 March, saw revheads and car-enthusiasts flock from all around Victoria to Essendon Fields to take part in the inaugural Big Boys Toys Car Show with proceeds going towards Muscular Dystrophy programs, services and research.

The event was a huge success raising over $40,000, with more than 1,000 people in attendance and in excess of 200 cars on show. The day saw crowds of all ages lapping up the sun and taking in the amazing array of vintage, modern and custom cars on display. The grounds were abuzz with motoring aficionados talking shop and swapping stories... [CONTINUES]

To view the full article click on the 'Read more' link...

(11 March 2015)

MDA will miss the beloved German Shepherd dog, Iva

MDA has been saddened by the loss of the beloved German Shepherd dog, Iva, who brought so much joy to our office. He passed away last night at the young age of six and was the loyal pet of MDA’s Executive Director’s son Leon Struk. Iva brought much happiness to the Future for Young Adults Program when he visited and was always thought of as the unofficial mascot for MDA.

Our thoughts are with the entire Struk family.

Hume Leader newspaper: Passion for cause revs up for show

Muscular Dystrophy Australia founder Boris Struk, from Greenvale, in his 1970 Corvette that will be one of the cars featured at the Big Boys’ Toys Car Show this weekend.

But his drive to raise money for muscular dystrophy research in honour of his son, Ryan, 35, hasn’t stopped, with the gears now in motion for a charity car show.

The Greenvale man founded Muscular Dystrophy Australia more than 30 years ago after Ryan was diagnosed, with about $43 million raised since. He hopes the community will support this weekend’s Big Boys’ Toys Car Show... [CONTINUES]

To download the full article click on the 'Read more' link...

(03 March 2015)

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Muscular Dystrophy Limited
111 Boundary Road North Melbourne VIC 3051

Phone +61 3 9320 9555
Fax+61 3 9320 9595

ACN 122 847 161

Muscular Dystrophy Association Inc
111 Boundary Road North Melbourne VIC 3051

Phone +61 3 9320 9555
Fax+61 3 9320 9595

ABN & DGR 33 376 893 530 Assoc Reg No. A 14397Z

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