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From the Desk

A message from MDA's Executive Director...

What an amazing event this year’s MDA Run for Strength was on Sunday! I would have to say it was our most enjoyable fun run held to date with a crowd of more than 1,000 people and so far we have raised close to $30,000. The weather was perfect with bright sunny skies and the crowd was in fantastic form with an abundance of happy smiling faces and laughs shared.

There were hundreds of superheroes zooming along the track and it was great to see so many of our MD community taking part. You can check out some of the event photos on our Facebook page here... [CONTINUES]

To view the full 'From the Desk' article click on the 'Read more' link...

(17 February 2015)Read more...

Hume Leader newspaper: Passion for cause revs up for show

Muscular Dystrophy Australia founder Boris Struk, from Greenvale, in his 1970 Corvette that will be one of the cars featured at the Big Boys’ Toys Car Show this weekend.

But his drive to raise money for muscular dystrophy research in honour of his son, Ryan, 35, hasn’t stopped, with the gears now in motion for a charity car show.

The Greenvale man founded Muscular Dystrophy Australia more than 30 years ago after Ryan was diagnosed, with about $43 million raised since. He hopes the community will support this weekend’s Big Boys’ Toys Car Show... [CONTINUES]

To download the full article click on the 'Read more' link...

(03 March 2015)Read more...

Sunday Herald Sun (page 2): Fathers put feet first to fight disease

SUPERHEROES invaded Blackburn yesterday. But instead of soaring through the skies, a group of 112 “superdads” pounded the pavement in their battle against a different kind of kryptonite.

Brett Bugeja’s friends, colleagues and teammates united to support his son Ben (together, above left), 13, who has been diagnosed with muscular dystrophy.

They walked about 18km but it could have been a quick trip around the world as the dads were served beer and food from different countries at seven stops along the way... [CONTINUES]

To download the full article click on the 'Read more' link...

(02 March 2015)Read more...

Thank you to all those who took part in Super Dads Walk 4

What a spectacular day Saturday was, 28 Feb, with 112 dads walking through the streets of Blackburn to support Muscular Dystrophy Australia. The day was a huge success and a lot of laughs were had by all. Thank you to Brett and Katrina Bugeja for organising the fourth annual ‘Super Dads Walk’. The Bugejas joined the MDA family many years ago when they took part in the very first ChallengeMD Vietnam 2006 pedalling from the north to the south... [CONTINUES]

To view the photos of the event click on the 'Read more' link...

(02 March 2015)Read more...

 

Thank you: Freestones give their time freely to support MDA

It is a wonderful thing to have people join the Muscular Dystrophy journey along with MDA in providing continued support time and time again. This is very true for two dedicated supporters, Paul and Christine Freestone of Freestones Transport.

The married couple began supporting MDA over six years ago when they donned their hiking boots and trekked Nepal along with a group of other like-minded people in the ChallengeMD! 2009 Nepal event.

Since then the pair have contributed to the cause in numerous ways and most recently Paul, a keen motoring enthusiast, has branded his competing car for the upcoming Clipsal 500 Adelaide with the MDA logo... [CONTINUES]

To view the full article click on the 'Read more' link...

(27 February 2015)Read more...

Media Release

MDA sceptical over proposed changes: Disability Support Pension

“While I do believe there is definitely a need to ensure people receiving government welfare payments are truly eligible, I am nervous about the proposed simplification of the process. To me it doesn’t evoke a sense of reassurance that people with a disability will be treated as individuals, rather they may just be lumped into black and white categories with no room for grey area specific for their situation,” said Muscular Dystrophy Australia’s Executive Director, Boris M Struk.

A report by former Mission Australia chief Patrick McClure to be released today, recommends condensing 20 support payments to just five, and slashing the 55 supplements to just a handful to make the system simpler to administer.

“I am sceptical in that I hope this is not just a money saving venture designed to make reductions in the welfare, specifically disability, sector and I hope the money saved from the dubious claimants will be redistributed to benefit those who truly deserve the assistance,” said Mr Struk...[CONTINUES]

To download the full Media Release click on the 'Read more' link...

(25 February 2015)Read more...

Research News

Clinical trial of new steroid drug VBP15 for DMD starts

ReveraGen BioPharma has announced the start of a Phase 1 clinical trial of a new steroidal drug, VBP15, for Duchenne muscular dystrophy (DMD). It is hoped that VBP15 will have at least the same benefits as the currently used corticosteroids, but fewer side effects. The trial, being conducted in the USA, will involve only healthy volunteers. This is standard practice for phase 1 trials and will give the first information about the safety of the drug in humans. If all goes well in the phase 1 trial, a phase 2 trial in boys with Duchenne MD should start later this year.

(25 February 2015)Read more...

2015 Superhero Day for MD - Registrations Open Now!

*Childcare Centres

*Primary and High Schools

*Workplaces

*Community Groups.... and more!

Host a Superhero Day for MD event during National Superhero Week from Mon 31 Aug - Fri 4 Sept 2015. If these dates don't suit your organisation you can host the event at any time of the year.

You can visit the Superhero Day website here or the Superhero Day Facebook page here.

Call MDA on (03) 9320 9555 for more information.

Click on the 'Read more' link to download the Registration Form...

(24 February 2015)Read more...

2015 MDA Run for Strength photos now online!

Check out some of the amazing pics from this year's MDA Run for Strength Fun Run held on Sunday 15 February 2015.

The photos are viewable on the MDA Facebook Friends page here. Make sure you add MDA as a Facebook friend so you can keep up to date with everything that is happening in the MD community.

You can also like our MDA Facebook Company page here!

(17 February 2015)Read more...

Article: Shorter family joins fun run  - Condition no barrier for pair

MAX and Will Shorter race at breakneck speed around their grandparents’ backyard like normal little boys.

But unless a major medical breakthrough is made, the pair won’t grow quite like their contemporaries. Max, 5, and Will, 4, were diagnosed with Duchenne muscular dystrophy (DMD) just before Christmas in 2013.

Parents Belinda and Leigh said they noticed the pair were slow to walk and didn’t climb on couches or chairs like other kids their age.

Their calf muscles were also enlarged – a key sign of the muscle-wasting disease. “Duchennes is the most common one, but it’s also the worst one,” Mr Shorter said...[CONTINUES]

To download the full article click on the 'Read more' link...

(11 February 2015)Read more...

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Muscular Dystrophy Limited
111 Boundary Road North Melbourne VIC 3051
Australia

Phone +61 3 9320 9555
Fax+61 3 9320 9595

ACN 122 847 161

Muscular Dystrophy Association Inc
111 Boundary Road North Melbourne VIC 3051
Australia

Phone +61 3 9320 9555
Fax+61 3 9320 9595

ABN & DGR 33 376 893 530 Assoc Reg No. A 14397Z

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