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From the Desk

A Xmas message from the MDA Executive Director Boris M Struk

Only a few days now until Santa places presents under the trees, delicious meals are shared in abundance and we have a chance to relax and reflect on a year that was. This is definitely a special time of year with Christmas spirit in the air and an opportunity for many to catch up with those in their lives who, for the most part of the year, a busy life gets in the way of seeing. It is important to take stock at this time of year and give yourself a moment to contemplate all that has occurred over the last 12 months.

(22 December 2014)

Message from Boris

Social Commentary Piece: Appalling discrimination in the UK

Hearing about the incident just a few days ago in England where a man with Duchenne MD was asked to leave a cinema because his ventilator was “too loud” and reported as a “nuisance” by some movie-goers has made me question how some people can be so cruel and ignorant.

This man, Richard Bridger 31, was basically told that his assisted breathing machine - which was keeping him alive - was such an inconvenience to others that he was no longer welcome to partake in the movie-going experience.

Do these people realise that air is free and while most of us have the luxury of breathing unassisted, people with MD often need to rely on a ventilator to sustain their life?... [CONTINUES]

To downloand the full message click on the 'Read more' link...

(19 January 2015)

2015 MDA Run for Strength Registration Open Now

There is less than a month left until the annual MDA Run for Strength Fun Run being held at Albert Park on Sunday 15 February 2015.

You can register your participation by visiting the event website here.

We look forward to seeing you all on the day!

(19 January 2015)

Media Release

Camp for children with a disability brightens lives

“Muscular Dystrophy Australia (MDA) has been holding camps for children with Muscular Dystrophy (MD) for over 20 years and we are so excited to be hosting our 93rd CampMDA”, said MDA Executive Director, Boris M Struk.

Muscular Dystrophy (MD) is a term used for more than 60 neuromuscular disorders and it is defined as a progressive muscle destroying disorder which wastes all muscles away causing immobility, respiratory problems and cardiac complications. Many types of MD are considered life threatening and are known to drastically shorten life expectancy, which differs with each individual condition.

Duchenne Muscular Dystrophy (DMD) is the most severe form of MD and it affects young boys who are diagnosed between two and six years of age. CampMDA is a cornerstone service that MDA provides to those in the MD community and is one of the most important activities which MDA facilitates as it provides over 14,000 hours of respite per annum to families of affected children... [CONTINUES]

(19 January 2015)

Research News

Research Round-up 2014 – other muscular dystrophies and neuromuscular conditions

In the run up to Christmas we are publishing summaries of the progress made this year towards treatments for muscular dystrophies and related neuromuscular conditions. Muscular Dystrophy Australia supports people with any one of more than 60 neuromuscular conditions. We have already published updates for some of the more common conditions and this week we have the research highlights for the other conditions we cover.

(15 December 2014)

MDA Harley Raffle No. 57 Winner

MDA Harley Raffle No. 57 Winner


G. Morton

Port Lincoln SA Australia


Ticket No. 8983

MEDIA CLIP: MDA interviewed on ABC News24 - Afternoon Show

Muscular Dystrophy Australia's Executive Director Boris M Struk was interviewed on Monday 8 December 2014 on ABC News24's Afternoon Program with Kim Landers and Tony Eastley in regards to the sad passing of disability advocate Stella Young.

You can view the video clip by clicking on the 'Read more' link...

(10 December 2014)

Media Release

Charity boss saddened by death of disability advocate Stella Young

“On behalf of myself and the Muscular Dystrophy community I offer our deepest sympathy to the family and friends of Stella Young who unexpectedly passed away on Saturday evening at the age of 32,” said Muscular Dystrophy Australia’s Executive Director, Boris M Struk.

“Stella was a truly brilliant woman who was such a strong advocate for the disability sector and her strength rang not from a victim mentality but as someone who wanted equality for the disability community rather than special treatment,” said Mr Struk.

The family of Young recently advised of her passing via a public statement. Young was born with Osteogenesis imperfecta, which is commonly known as brittle bone disease.

“Her sentiment of wanting a fair go for those living with a disability teamed with her quick wit and smart humour made her a formidable, and well respected, voice within the community,” said Mr Struk... [CONTINUES]

To download the full media release click on the 'Read more' link...

(08 December 2014)

Research News

Research Round-up 2014 - SMA and ALS

In the run up to Christmas we are publishing summaries of the progress made this year towards treatments for muscular dystrophies and related neuromuscular conditions. This week we focus on the conditions that affect the motor neurons – spinal muscular atrophy (SMA) and amyotrophic lateral sclerosis (ALS, also known as motor neurone disease or Lou Gehrig's disease).

(04 December 2014)

Moonee Valley Leader paper: The place where men become boys

REVHEADS and car enthusiasts can get their motors running at the inaugural Big Boys Toys Car Show.

All proceeds from the Essendon Fields event will support Muscular Dystrophy Australia, with patrons expected to flock to the fundraiser to view display cars, including a police sheriff’s car, an old-time fire engine and the Batmobile.

Executive director Boris Struk said the show would turn “even the most hardened car buffs into boys”... [CONTINUES]

To view the full article click on the 'Read more' link...

(03 December 2014)

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Muscular Dystrophy Limited
111 Boundary Road North Melbourne VIC 3051

Phone +61 3 9320 9555
Fax+61 3 9320 9595

ACN 122 847 161

Muscular Dystrophy Association Inc
111 Boundary Road North Melbourne VIC 3051

Phone +61 3 9320 9555
Fax+61 3 9320 9595

ABN & DGR 33 376 893 530 Assoc Reg No. A 14397Z

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