Media: Drawing the line the tough part of disability services

Article in The Australian commenting on NDIS and disability services

Archie, a young man with Muscular Dystrophy but whose attitude to life is inspirational.

Come & meet Archie & his student friends in ‘13’ a Broadway hit musical presented by Peoples Playhouse from April 12 at the Cranbourne Community Theatre. Read more...

Bob Katter's footballer tax breaks are misguided and outrage the disabled community...

“MP Bob Katter has really lost touch with reality this time if he thinks giving footballer players a tax break is high on the agenda of the Australian public. His focus needs to turn to those in our community who are in need rather than those who are put on a pedestal,” said Muscular Dystrophy Australia Executive Director, Boris M Struk.

Signcraft's Donation - A sign of a great company…

A cockatoo feeding frenzy soon destroyed the MDA's building signage. Signcraft comes to the rescue. Read how by clicking below...

MDA is pleased to introduce our new PR & Communications Manager - Courtney Burger.…

4000km’s across The Indian Subcontinent. One 7hp Rickshaw, two adventurers with just two weeks to compete, complete and survive…

All in the name of Muscular Dystrophy...

Vino, Pasta & Dolci while Finding Valentino ...

Close to two hundred people attended last weekend’s Finding Valentino Luncheon hosted by MDA’s Dystrophy Divas, raising more than $12,000 for MDA.

2013 'YPA - Run for Strength' proved to be the most successful event yet with more than 1,100 participants

Albert Park was abuzz with people from all stages of life from little children excited to be out with the family, serious athletes ready to race and groups of women in their 80s who lapped up the opportunity to enjoy a nice walk around the lake on such a beautiful day.

Another Unique Event by Dystrophy Divas  ...

Indulge in a fabulous feast of rustic Italian food whilst being entertained by authentic musicians.

Sunday 3rd March 2013 - keep the afternoon free and click here to read all about it.

YPA - "Run For Strength" 2013 is on again - put the date in your diary...

Sunday, 24 February 2013 8:00 AM - 12:00 PM

5km Walk, 5km Run or 10km Run

Followed by a BBQ.

Registration $30 - Kids Free!!!!

Albert Park
Palms Lawn, Albert Park Lake, Albert Park

Click on link below to register online...

Launch of a New Service - for everybody, not just the MD Community...

eMDA! or Emergency Medical Details Alert is something you should never leave home without.

A credit card size USB device which holds all your emergency contact details, medical history and medications you may be using, which would be of immense value in the event of an accident or illness while you are away from home.

Your emergency and medical details can be entered on the provided PDF form with editable fields. You determine how much information you want to include on this form.

Long-time supporter of MDA is a Winner with Harley Raffle #53

Sometimes good people win!

This is the case with Ross D. from Gladstone in Queensland. Ross has been purchasing tickets in MDA's Harley Raffles since Raffle No. 2. Ross is one of our longest supporters. Ross' Ticket No. 3978 was drawn from the barrel and he is now the proud owner of a brand new Fat Boy and in time for Christmas. Ross, "Thanks" for your long-time support of MDA.

MDA's Multilingual Information Service - Turkish

MDA has added more information on MD to its Multilingual Information Service.
The latest Fact Sheet on Congenital Myotonic MD has been expertly translated into Turkish.

DMD Research Project - Diagnosis experience and views on testing in the future

Researchers at the Murdoch Children's Research Institue (MCRI) have developed a survey for family members of individuals with Duchenne Muscular Dystrophy (DMD) and are seeking their participation in a new and exciting project. The project is  funded by the MCRI and Muscular Dystrophy Australia.

The 53rd Harley Raffle is a 2012 Fat Boy. This will be another "sell out" so be quick in placing your order today!

MDA announces - ChallengeMD! Morocco 2013

This is the next major event for the MDA which will now see Trekkers undertake perhaps the most gruelling challenge to-date for Muscular Dystrophy.

More than $2 million has been raised since ChallengeMD! Vietnam 2006.

Read all about it by following the link and learn how you can participate as a Trekker or Sponsor and Help Fight Muscular Dystrophy!

MDA Trivia Night

Wednesday 25th July 2012. North Melbourne Town Hall.

Come along for a night of fun and frivolity while helping to support the MDA.

Long-time supporter of MDA is a Winner with Harley Raffle #52

Sometimes good people win!

This is the case with Amanda (Mandy) from Mackay in Queensland. Mandy has been purchasing tickets in MDA's Harley Raffles since Raffle No. 35. It was with the greatest of pleasure that MDA rang Mandy to advise her that Ticket No. 2705 was drawn from the barrel and she is now the proud owner of a barnd new Fat Boy. "Thanks" for your long-time support of MDA, Mandy.

Melbourne Cup - Americain - visits MDA

Americain, was the 2010 Melbourne Cup winner. Part owner, Colleen Bamford recently visited the MDA with the Melbourne Cup, Americain's jockey silks and winners sash.MDA Staff and Futures participants had first hand experience with the Melbourne Cup and memorabilia.

InformationMD! 2012

The MDA's annual information seminar InformationMD!  2012 will be conducted on Wednesday 25th and Thursday 26h October 2012 in the MDA Conference Centre in North Melbourne.

Program details to follow...

Boxing Legend calls for Community Support in the Fight against Muscular Dystrophy

Former boxing legend Barry Michael will make an exclusive appearance at the Muscular Dystrophy Association’s (MDA) Friend Raising Evening at the Crown Entertainment Complex on Wednesday 20th June..

Research Update

An international team led by the University of Melbourne has found that increasing a specific protein in muscles could help treat Duchenne muscular dystrophy.

MDA's Multilingual Information Service - Arabic

MDA has added more information on MD to its Multilingual Information Service.
The latest Fact Sheet on SMA Type I has been expertly translated into Arabic.

Muscular Dystrophy featured at Flemington VRC - Charity Raceday

MDA receives signifiacnt profile on course at the prestigious Flemington Racecourse. MDA Members, donors, supporters and members of the general public heard all about MDA, its programs and services with live interviews broadcast on-course and full page editorial in the day's race program.

Victoria Police Detective Training School Supports MD

The Centre for Investigator Training, Detective Training School Course 228 B was pleased to present MDA Client Services Manager Marie Fleming with the product of their class investigation...

MD Education Seminar! 2012

MD Education Seminar 2012 - a comprehensive multidisciplinary seminar, presented the latest and up to date information for anyone involved with students in the education system who are affected by Muscular Dystrophy.

All Aboard - Accessible Journeys Everywhere

All Aboard wants all buses, trains and trams, supporting infrastructure and service information to include the needs of all Victorians. Universal access is a human right and we need action NOW from Government and transport operators to ensure that we are all aboard.

The 52nd Harley Raffle is a 2012 Fat Boy. This will be another "sell out" so be quick in placing your order today!

MDA Harley Raffle No. 51 Winner

Phillip S. of Bunbury Western Australia

Ticket No. 13093

Melbourne ACES Hitting MD for a "Home Run"...

Melbourne Aces Baseball has teamed up with MDA to hit MD out of the ball park. The partnership will see a week devoted to the promotion of MD and associated fundraising activities. Members of the MD Community and friends are invited to attend the family day in support of MD... 

You all know about driver fatigue and the physical manifestations connected to it.

All the warning signs are there with driver fatigue… the heavy eyes, your wits are sluggish and that overwhelming sensation of tiredness engulfs you.
Donor fatigue is not much different to this.

For us humble charities, we are experiencing the worst donor fatigue I have seen, in more than 25 years of my involvement with MDA.
Australian charities fear donor fatigue amid mounting natural disasters around the world this year.

MDA Annual Christmas Party

Come join MDA Staff, members and friends at the Annual MDA Christmas Party. Santa's Christmas Spectacular will feature "Dora the Explorer", Singing Santa, bands, games and carnival rides. A not-to-be-missed event!!!

ChallengeMD! 2011 Mongol Rally - Half-way point reached...

Leon M Struk and Ian Casey, TeamMDA have reached the hal-way point in their epic charity journey. Pictures and real-time GPS of their journey accessed below...

Senator the Hon Jan McLucas, Parliamentary Secretary for Disabilities & Carers, Launches New Australian Website To Help Manage Duchenne Muscular Dystrophy

Launching the website at Muscular Dystrophy Australia’s headquarters in Melbourne today, Parliamentary Secretary for Disabilities and Carers Senator Jan McLucas said the Australian Government-funded portal will, for the first time, enable information about Duchenne Muscular Dystrophy to be available from one location.

The Government has just announced that they share the vision for a National Disability Insurance Scheme and will begin laying the foundations for its introduction.

ChallengeMD! 2011 Mt Blanc

Seventeen Trekkers return triumphant, conquering Mt Blanc – covering more than 190km through three countries and ascending more than 9,000 meters and raising $200,000 for MD Research.

General Motors - Commodore Missions

Muscular Dystrophy Association (MDA) will receive a loan of a Holden Commodore today as part of Commodore Missions, a program designed to thank the wider community for making Commodore Australia’s best-selling car for 15 years. 

Aussie Farmers Direct Supporting MDA!

See how to get the best produce and support MDA at the same time...

Winter Nights In...

Want a way to distract yourself in the winter months, whilst supporting a good cause?

Trivia Night ChallengeMD! 2011 Mongol Rally

Friday night saw the MDA Conference room packed to the rafters with more than 140 participants in the Trivia Night. A huge success read more about it...

Long-time supporter of MDA is a Winner!

Sometimes good people win!

This is the case with James M. of Wabell Heights in Queensland. James has been purchasing tickets in MDA's Harley Raffles since Raffle No. 1. It was with the greatest of pleasure that MDA rang James to advise him that his Ticket No. 12770 was drawn from the barrel andhe is now the proud owner of a 2011 Fat Boy. "Thanks" for your long-time support of MDA, James.

Black & White Gala Dinner in support of MD!

A night of fine food, fun and entertainment in the River Room - Crown Entertainment Complex supporting the MDA.

A night "not to be missed!"

ChallengeMD! 2011 Mongol Rally - Team MDA

15,000 kilometers of desert, mountains, dirt tracks and bandits in a tiny car.. that's the adventure Melbourne based aircraft engineer and photographer Leon M Struk (33) along with Irish born, San Francisco based business executive Ian Casey (38) will be heading off in late July in a bid to raise much needed funds for Muscular Dystrophy Australia.

Dad to Dad Weekends!

The aim of the Dad’s Initiative Program is to offer fathers of people with a disability the opportunity to meet other dads and to develop the confidence, skills and networks they need to take an active role in the support of their son/daughter with a disability.

"We Do Care" Gala Dinner in support of MD!

A night of fun, entertainment by The Three Tenors and much, much more. Come and support the MDA, full details below.

ChallengeMD! 2011 Mt Blanc Sponsor a Trekker

Seventeen Trekkers have committed to Fight for MD while undertaking the arduous task of Trekking around Europe's tallest mountain, Mt Blanc. Help them to raise the essential research dollars by sponsoring their efforts.

With less than two months before the Team heads off, now is the time to sponmsor a Trekker and take advantage of a financial year end tax break.

Follow the link to sponsor a Trekker...

Research & Information Session - Geelong

Dr. Jason White of the National Muscular Dystrophy Research Centre will give a talk on: What research is being done to increase knowledge around Muscular Dystrophy, Medical advances that are on the horizon for better diagnosis and management of MD; and What research might bring to in the future to the MD community...

On Sunday, 17 July 2011, Run Melbourne, presented by The Age will be held once again, offering participants a half marathon, a 10km run and a 5km run or walk starting and finishing at Federation Square. New in 2011, is the free Run Melbourne health and fitness expo (Thursday, 14 July - Saturday, 16 July) and a 3km Kids Event (Saturday, 16 January). We look forward to seeing you at the start line.

Click on link to go to Sponsorship Page to support MDA.

Run For Strength - Albert Pak Fun Run a Huge Success!

Sunday 20th February saw the successful conduct of the third Run for Strength fun run around Albert park Lake.

The event has raised an amazing $63,378 bringing the total to a spectacular $150,136.

Funds raised through Run for Strength will be dedicated to MD Research through the Muscular Dystrophy Research Foundation and scientists at the National Muscular Dystrophy Research Centre.

Congratulations to organisers Ozi Akyildiz and Sam Quattrone for the drive and energy which makes this event a huge success for MD Research.

Click the link below to see pictures from the event.

Exploring Innovation in Accommodation Support

A seminar to give people with disabilities and their families the opportunity to hear from a range of inspiring speakers who have tackled the question of “accommodation” in creative, personalised and life giving ways, while meeting some of the most complex of needs.

Join MDA and "Run for the Kids 2011"

Many of us spend time at the Royal Childrens Hospital with our children, and receive first class medical support from some very amazing professionals.

To show our support and appreciation, MDA are inviting individuals, family and friends to join our "Run for the Kids" team on Sunday April 17th to walk/run 5.7km

Are you confused by all of the changes in the DHS system?

VALID is runnning a FREE course designed to assist parents/families to get updated  on the many changes in the disability services area and to utilise all resources available, eg. ISP's.

It will also assist families to consider the role they are currently playing and look at areas they wish to change, such as, greater involvement in how planning happens for their family member.

Expressions of interest need to be submitted to VALID by 16th February - see link below.

MDA's Multilingual Information Service - Greek

MDA has added more information on MD to its Multilingual Information Service.
The latest Fact Sheet on Myotonic MD has been expertly translated into Greek.

MDA Harley Raffle # 49 - Winner Announced

The winner of MDA Harley Raffle No. 49 is:

Ticket No. 06401 Mark C. of Lithgow NSW.  It took some convincing Mark that it was not a "prank" call. Congratulations and Thank You to all ticket buyers for Supporting the work of MDA.

2010 has flown by and as you know, so much has happened nationally, state wide and at MD Headquarters The Home of MDA. One federal and one state election, the breaking of the drought, and increased interaction with the Federal Government have all presented opportunities to further the MD cause.  The lead-up to each election provided ample opportunity to showcase MD research, MDA programs and table issues.

Music Dance Arts

Proudly sponsored by Jason Coleman’s Ministry of Dance; this event is a unique opportunity to have some fun in support of Muscular Dystrophy Australia.

A must attend event for any Melbourne PA who knows how to have a good time.  Places are limited so sign up early to avoid disappointment.

MDA's Multilingual Information Service - Afghanistan (Dari)

MDA has added more information on MD to its Multilingual Information Service.
The latest Fact Sheet on Friedreichs Ataxia has been expertly translated into the Dari dialect.

Prof Eric Hoffman presents at InformationMD! 2010

A capacity audience filled the conference facility at the MDA National Headquarters to hear Prof Eric Hoffman and key experts in the area of MD at InformationMD! 2010.

MDA Launches National Duchenne MD Registry  

The Hon David Davis, MLC, Shadow Minister for Health officially launched the all-new National Duchenne Muscular Dystrophy Registry in front of the Australian neurological medical community...

InformationMD! 2010

The MDA's annual information seminar InformationMD!  2010 featuring key presenter - Prof Eric Hoffman will be conducted on Wednesday 17th and Thursday 18h November 2010 in the MDA Conference Centre.

Full program details and downloadable PDF located at link below.

The annual Orchestra Victoria concert in support of MDA with a capacity audience.

MDA receives a surprise bonus from Mobil Quix.

ChallengeMD! 2011 Mt Blanc Information Night

Already registered? Interested to learn more about this exciting way to help fight MD?

Together with RAW Travel, MDA is hosting an information night at the MDA Centre on Wednesday 10th November 2010 at 6.30pm.

Follow link to read all about ChallengeMD!  2011 Mt Blanc and full details on the information night.

The 49th Harley Raffle is a 2010 Fat Boy Lo with magnificent custom paintwork provided by John Kral of Kral's Creations. This will be another "sell out" so be quick in placing your order today!

Department of Justice Supports Muscular Dystrophy

MDA member Kim Jago works for the Department of Justice (DOJ) and has been a strong advocate for the work undertaken by the MDA.

A visit by the DOJ staff to the MDA Centre resulted in a cheque presentation.

Support MD by sponsoring one of the many runners participating in Run Melbourne on Sunday 18th July. The most recent registrant is Alecka Patralakis daughter of Strathmore North Primary School Vice-Principal. 

 Click on link below to visit the site and make your donation.

Winner of MDA's Harley Raffle 48 is Chris from West Australia with Ticket Number 14001. Congratulations Chris!!!

Tamara Jabber member of ARIA award winning pop group has chosen to support Duchenne Muscular Dystrophy through Save our Sons in Channel 7's Dancing with the Stars.

An Australian first, one-stop clinic for neuromuscular disorders that is dramatically reducing the number of visits families make to The Royal Children’s Hospital (RCH) was officially launched by Hon Bill Shorten MP, Parliamentary Secretary for Disability and Children’s Services.

There was a book that I bought a long time ago called “I Bought a Ticket to Paris but Ended up in Rio”. The title alone has a lot of significance to my personal and professional life and I find myself thinking about that title often. My interpretation of the meaning behind the title is “I thought I was getting one thing, but was given another, which was out of my control”....

Recently, the title of this book has come to the forefront of my mind once more, in a professional sense. My ‘ticket to Paris’ is MDA and the respect and reputation that has been built over the past 25 years. The ‘Ended up in Rio” is when I realise that no matter how hard you work for your credibility as an organisation, there are other people who may threaten to damage it without consideration or fore thought, all for the sake of a quick buck. 

MDA - "The Facts" 

MDA - A rich 25 year history in supporting Australia's MD Community by providing unparalled
access to Services, Support and first-class Respite programs. 

The Home of MDA - Over 21 million hits - translated into 15 languages. Click here for - More MDA Facts!

My Diverse Australia a full-page feature in Sunday Herald-Sun!

My Diverse Australia is featured in Australia's highest selling Sunday newspaper, Sunday Herald Sun on page 33.

Purchase your copy of this critically acclaimed book. This is one way of supporting the vital work of the MDA.

This beautiful, unique and large-sized book will look right at home on your coffee table or equally comfortable in a corporate board room.

Follow the link to read the latest and to place your orders.

PTC Therapeutics, Inc. and Genzyme Corporation announced preliminary results from the Phase 2b clinical trial of ataluren, an investigational new drug, in patients with nonsense mutation Duchenne/Becker Muscular Dystrophy (nmDBMD). The primary endpoint of change in 6-minute walk distance did not reach statistical significance within the 48 week duration of the study. Study results showed that ataluren was well tolerated and no clinical trial patients discontinued treatment due to an adverse event. Additional efficacy analyses are underway in patient subgroups. 

 ChallengeMD! 2010

Sunday 21st February saw the successful conduct of the second Run for Strength fun run.

The event has raised an amazing $46,562 and combined with the inaugural event has contributed $86,758 for MD Research.

Funds raised through Run for Strength will be dedicated to MD Research through the Muscular Dystrophy Research Foundation and scientists at the National Muscular Dystrophy Research Centre.

Click the link below to see the results and pictures from the day.

Melbourne Storm players take time out from their rigorous training schedule to meet with members of the MD community and to help promote “Run for Strength” at Albert Park Lake on Sunday 21st February.

Over 90 campers, carers and support staff from around Australia descended upon Camp Manyung in Mt Eliza to celebrate the week-long 76th National CampMDA.

Musicians, Motor Racing Drivers, Singers and Boxers have something in common?

Wayne Gardner, Sir Richard Branson, Anthony Mundine, Mark Seymour, James Reyne, Jon Stevens, Mark "Jacko" Jackson, Holly Valance, Brett Tucker, Carla Bonner, Ben Mendelsohn and Isabel Lucas are just some of the people who all represent an eclectic group throwing their support behind MD and contributing to My Diverse Australia.

MDA & Orchestra Victoria Partnership

An enduring partnership with Orchestra Victoria, NGV International and Muscular Dystrophy presents our annual event. 

Now is the time to order your Christmas Cards. MDA have a selection of contemporary personal cards, ideal for family, friends and business.

Your order will assist the MDA with the provision of support services, respite programs, information services and scientific research.

To view our samples or to download  an Order Form --->

MDA Annual Christmas Party 

A magical Christmas wonderland of fun that members of the MD Community, family and friends will never forget.

Triumphant Trekkers Return ChallengeMD! 2009 Nepal 

ChallengeMD! 2009 Trekkers retuned triumphant, having conquered the dizzy heights of Nepal and raised more research funds for MD Research through the Muscular Dystrophy Research Foundation in support of scientists at the National Muscular Dystrophy Research Centre.

An opportunity still exists to sponsor the supreme efforts of our Trekkers - to read about the challenge or to sponsor a Trekker, click on the following link...

Australian Open Garden Scheme 

On display as part of the Australian Open Garden Scheme, Su's Garden in Glen Iris will be open to the public 7-8th November 2009, between 10:00am and 4:30pm. Net proceeds are being donated to the Muscular Dystrophy Association.

ChallengeMD! 2009 Nepal 

An opportunity to sponsor ChallengeMD! 2009 Trekkers is still available before they head of on the 16th October to trek Nepal.

Funds raised through this arduous event will be dedicated to MD Research through the Muscular Dystrophy Research Foundation and scientists at the National Muscular Dystrophy Research Centre.

To sponsor a Trekker, click on the following link...

Sunday 25th October 2009 the Ivanhoe Golf Course will play host to the Run For Strength Charity Golf Day.

A 10am Tee Off after paying a $50 registration fee to compete Ambrose with four players per group.

Trophies to the winning team.

Registrations to Sam 0416 199 927 or Ozi 0400 080 372

 In support of the Muscular Dystrophy Research Foundation

Champion boxers Kostya Tszyu, Barry Michael, Sam Soliman & Paul Briggs - have united in the FightMD Campaign.

Launched on Sunday 16th at Sam Soliman's "Return of the King" bout "Box on the Docks 6", the FightMD campaign has set the stage for MDA's national awareness campaign aimed at print and TV media.

MDA's Latest Additon - Video Feeds! 

The MDA's Video Feeds! designed to provide easy access to all our current video resources.

MDA's Multilingual Information Service - Urdu

MDA has added more information on MD to its Multilingual Information Service.
The latest Fact Sheet on Ullrich Congenital MD has been expertly translated into: Urdu.

Beach2Border Cycle Challenge 2009

The Beach2Border Cycle Challenge was created by a group of social riders, keen to challenge themselves by riding from the beach at Port Melbourne, to the border of Victoria and NSW at Echuca/Moama.

In support of DMD Research at the NMDRC.

Stay Up-to-Date with MDA's RSS Feed

MDA now has RSS feeds available.  This service ensures you have the news at your fingertips as soon as it's added to our site.

MDA Executive Director - Boris M Struk's contribution to the MD Community recognised

Boris was a standout winner who has shown enormous dedication to raising awareness and crucial funding for muscular dystrophy in Australia.” said Peter Blunden, Managing Director Herald & Weekly Times.

NAB Team Supports MDA  through the Great Ocean Walk.

A team building exercise to raise funds for the MDA.

Harley Raffle No. 46 and the Winner is!!!!!

Murray T. of Warragul Victoria - Ticket Number 10385.

Congratulations! Thank You to all all supporters who helped to make Harley Raffle No 46 a "Sell Out".

Nikon - MDA - FIFA World Cup Qualifier "What a combination!"

MDA was invited by NIKON to participate in the Field Photographer Program during the 2010 FIFA World Cup Asian Qualifiers on the hallowed turf of the MCG on 174th June 2009.  We have full details and a collection of photographs taken during the event in our Events section.

MDA's Multilingual Information Service - Turkish

MDA has added more information on MD to its Multilingual Information Service.
The latest Fact Sheet on Duchenne MD has been expertly translated into: Turkish.

MDA's Multilingual Information Service - Polish

MDA has added more information on MD to its Multilingual Information Service.
The latest Fact Sheet on Duchenne MD has been expertly translated into: Polish.

To order your copy of the 2009-2010 Entertainment Book follow the link.

MDA's Multilingual Information Service - Hindi

MDA has added more information on MD to its Multilingual Information Service.
The latest Fact Sheet on Duchenne MD has been expertly translated into: Hindi.

ChallengeMD! 2009 Nepal Information Night

Already registered? Interested to learn more about this exciting way to help fight MD?

Together with RAW Travel, MDA is hosting an information night at the MDA Centre on Tuesday 12th May 2009 at 6.30pm. Conatct MDA to RSVP on 03 9320 9555.

MD Calendar of Program Services & Events

An easy way to see what programs, services and events have been scheduled by the MDA. Click on the "What's On" logo or...

Announcement

ChallengeMD! 2009 Nepal 

We are excited to announce the next ChallengeMD! for 2009.

Previous participants have requested a change from cycling to trekking. So trekking it shall be, through the mountainous terrain of Nepal.

Australia's Biggest Book Group - Creates Volumes of Support for MD - 7 National News story 

7-Eleven together with MDA present Australia’s Biggest Book Group.

Would you like to be part of this year’s most sophisticated fundraising event?

More than 100,000 book enthusiasts are estimated to sign up to Australia’s Biggest Book Group, an all-new innovative and informal book club, which aims to raise more than $500,000 towards Muscular Dystrophy research and care in Australia.

Be part of the fun by joining Australia’s Biggest Book Group.

Details of this chic and classy event --> 

MDA's Annual Teachers' Seminar a big hit with teachers!

The annual Teachers Seminar saw a fantastic turnout from many schools, it was an innovative way to pass on a wealth of information regarding children affected by muscular dystrophy and their integration into the schooling system.

MDA's Annual Teachers' Seminar Fantastic Turnout!

The annual Teachers Seminar saw a fantastic turnout from many schools, it was an innovative way to pass on a wealth of information regarding children affected by muscular dystrophy and their integration into the schooling system.

Online Orders

Hales Institute in partnership with MDA presents "Flavours"

Hales Institute has been a leader in Education since 1920 and has partnered with MDA to present the "flavours" of diversity.

For more details of this exciting event and downloadable program (PDF) ---> 

MDA's Annual Teachers' Seminar on Muscular Dystrophy

Designed for teachers, integration aides and other school support staff who have a child affected by a neuromuscular disorder at their school.

Full Program and Registration available --->

Tour Duchenne - Event Launch Function

The Tour Duchenne launch will take place in Sydney's Cargo Bar in the evening of 4th March 2009.

Support the Riders and MD Research with your attendance.

Team Saxo Bank Gears Up to Raise awareness of Muscular Dystrophy in Tour Down Under

Adelaide, Australia, 20 January 2009 – Team Saxo Bank kicks off the season with the ProTour race Tour Down Under that starts today in Adelaide, and finishes on Sunday, January 25.

Team sponsor Saxo Bank, the specialist in online trading and investment, intends to use the opportunity to raise awareness of Duchenne Muscular Dystrophy. More...

MDA's Multilingual Information Service - Nepal

MDA has added more information on MD to its Multilingual Information Service.
The latest Fact Sheet on Duchenne MD has been expertly translated into: Nepalese.

MDA Harley Raffle No. 45 & the Winner is...

December 19th saw the draw of MDA's 45th Harley Raffle.

The winning ticket was drawn by Heavy Duty publishers and MDA sponsors Neale & Viv Brumby.

And the Winner is:  

Gavin G. - from Narre Warren-  Ticket No 6785

Another MDAutoBuy ticket subscriber!!

"Thank You" to all ticket buyers - Tickets in MD Harley Raffle No 46 will go on sale February 2nd 2009.

MDA's Annual Christmas Party

Rain did not dampen our spirits and a fantastic time was had by all who attended the Annual MDA Christmas Party.

Announcement

ChallengeMD! 2009 Great Ocean Walk

We are excited to announce the next ChallengeMD! Great Ocean Walk!

By popular demand and following the success of our first Great Ocean Walk.

Carla Bonner Visits the Home of MDA

Popular television actor, Carla Bonner from Neighbours, dropped in to visit the MDA and spent time with the Futures Program participants.

MDA Visits Gene Technology Centre

GTAC is a fantastic facility which devotes a lot of its time to research and teaching. MDA Staff and Futures visited the Centre.

The Home of MDA is now highly visible to 100,000+ daily commuters

New signage installed during National MD Awareness Month has made the Home of MDA even more visible to the masses.

ChallengeMD! has been a huge success for MD - Tour Duchenne was born to be bigger! 

ChallengeMD! has been a huge success for MD with OVER $1 Million raised to date from the rides through Vietnam, Cambodia and most recently, China.

Tour Duchenne was born during preparation for the Cambodian challenge by expat Aussie Julian Thompson, with the aim of the Tour raising $1 million for MD research, through one bike ride - Sydney to Melbourne in March 2009 where the National Muscular Dystrophy Research Centre and the Institute for Neuromuscular Research (in Sydney) research projects will benefit.

3 Days, 300 people Two Meetings - 7th AOMC and InformationMD! 2008 - Making a Difference  

Held over three days, the 7th Asian Oceanian Myology Centre (AOMC) Scientific Meeting,  the MDA's lay informatrion meeting InformationMD! 2008 and the INDAPS satellite meeting attracted over 300 people.

High quality presentations from leaders in their respective research fields added to the significant value experienced by  the audience members: lay and professional.

The ChallengeMD! Great Ocean Walk proves to be a huge success!

ChallengeMD! GOW 2008 saw 20 supporters trek along the recently opened Great Ocean Walk which spans 91km of spectacular coastal scenery, deserted wild beaches, sheer cliffs and historical lighthouses.

The first part of the challenge was to raise funds for MDA. And this was done in spectacular fashion with OVER $25,000 raised!

Concert by Orchestra Victoria for MD

The Great Hall, NGV International saw a capacity crowd exceeding 500 people attend the launch of MD Awareness Month to a free concert. 

Australian soprano Emma Matthews was joined by Orchestra Victoria in a special performance of ‘Philomele’s Aria’, the dramatic mad scene from Richard Mills’ The Love of the Nightingale, accompanied by a selection of enchanting Mozart arias. Led by Orchestra Victoria’s Principal Guest Conductor Marko Letonja, the exciting programme also included Prokofiev’s Sinfonietta and Berlioz’s virtuosic overture Le Carnival Romain.

Department of Justice Supports Muscular Dystrophy

MDA member Kim Jago works for the Department of Justice (DOJ) and has been a strong advocate for the work undertaken by the MDA.

A visit by the DOJ to the MDA Centre resulted in a cheque presentation.

St. Clare's Primary School in Thomastown West participated in a fundraising bike challenge as a sequel to last year's marvelous effort.

InformationMD! 2008 joins with the 7th Annual Scientific Meeting of the Asian Oceanian Myology Center

The MDA's annual information seminar InformationMD!  will be held concurrently with the Asian Oceanian Myology Centre Annual Scientific Meeting in Melbourne Australia 13th and 14th November.

Meet the experts, hear all about the latest clinical and scientific developments and join all delegates at the Official Dinner at the conference venue Langham on Southbank.

Places are filling quickly and only a small number remain. Don't miss this opportunity by delaying registration.

7th Annual Scientific Meeting of the Asian Oceanian Myology Center 13th-14th November 2008 Melbourne Australia

Melbourne will play home to the AOMC Meeting. 

This will be held concurrently with the MDA's annual seminar - InformationMD! 2008. 

ChallenegMD! Great Ocean Walk participant Ineke Struk, assisted by MDA's Vicki Cavalieros and MDA long-standing volunteer Sarah Good conducted a Trivia Night at the MDA Centre's Seminar Room in support of MDA.

ChallengeMD! Raises $1 Million

Since inception of ChallengeMD! with the Ride through Vietnam in 2006, followed by Cambodia in 2007 and having just returned from China, riders have generated over $1 Million for MDA.

This is a remarkable effort in fundraising terms and sheer physical effort in riding through harsh conditions of heat, humidity and often roads that are not fit for riding upon. Read about ChallengeMD! 2008 China.

MDA's Multilingual Information Service

MDA has added more information on MD to its Multilingual Information Service.
The latest Fact Sheet on Duchenne MD has been expertly translated into: Punjabi.

ChallengeMD Great Ocean Walk participant Marilyn Chong is holding a Halloween Dinner in support of the MDA.

Located at Forest Edge Restaurant in Gembrook, the dinner starting at 8pm on the 31st October will treat participants to a great night's festivities.

The Power of One is great however, the Power of Many has been said  "can move mountains" - join others in the helping to promote and advance the MD Cause through a strong, connected, community. Please consider joining our communities on Facebook  by clicking the link and becoming a member of this community.

Wheelchair and motorised scooter users are about to get a whole lot more power in The City of Darebin. See what MDA's Ray Jordan has done to infuelnce the outcome.

BOSCH Comes to the Rescue

As luck would have it, during the course of MDA's recent OperationMD ShortBreak long weekend at Wheelies' Rest, kids and carers were "left out in the cold" literally, when both hot water service units decided it was time to cease working.

While the kids enjoyed the opportunity of not having to shower, it was a far from perfect outcome, having both units fail simultaneously.

One quick phone call to BOSCH explaining our predicament, resulted in their Sales Manager making an instant decision to donate two BOSCH Hot Water Service units for MDA's Wheelies' Rest property.

MDA appreciates the quick and positive response made by BOSCH. It certainly “made our day”.

Living with Becker MD has provided Greg with a unique perspective on life. This perspective has been translated into T-Shirt design. Proceeds from the sale of Greg's T-shirts contribute to the NMDRC research effort.

The MDA is delighted to announce the launch of the latest MD Harley Raffle featuring absolutely stunning paint work by John Kral of Kral's Creations and Solid Wheels polished and chromed by Huntingdale Electroplating.

Early indicators tell us that ticket sales in this Raffle No 45 will be strong. So don't miss the opportunity to win this sensational bike, which drawn just in time for somebody to have a memorable Christmas present. 

Show your support of the MDA and put yourself in the draw to ride this unique Harley into 2009. More details and Order Form here...

Avant Card Supports Muscular Dystrophy Awareness

MDA are pleased to acknowledge the support of Avant Card - a progressive, dynamic advertising medium that has connected brands with people since 1992.

MDA's Multilingual Information Service

MDA has added more information on MD to its Multilingual Information Service.
The latest Fact Sheet on Duchenne MD has been expertly translated into: Sudanese Nuer.

MDA has experienced significant growth and as a result new Positions are available @ MDA.

With a significant increase in service provision and programmed activities conducted by the MDA, we are now "stretched to the limit" human resource-wise. We have several positions which require filling to enable us to continue to provide 1st class services and programs.

If you would like to be part of a dynamic, caring Team at MDA --->

ChallengeMD! Great Ocean Walk - Raise $950 and come experience what is destined to become one of the world's greatest hikes!

Opened in 2006, the Great Ocean Walk spans 91km of spectacular coastal scenery, deserted wild beaches, sheer cliffs, historical lighthouses and shipwrecks, giant mountain ash forests and abundant native wildlife.  It is destined to become one of the great walks of the world and it’s here right on our doorstep.

As we have reached maximum participation, registrations for the Great Ocean Walk have now closed. Thank you to all registrants for your support and fundraising.

MDA Neuromuscular Clinic at RCH forging ahead with Services and Research    

The Team @ RCH have been extremely busy working on exciting new projects for neuromuscular patients. New studies require the participation of young boys meeting certain eligibility criteria. Read about these latest developments --->

Dr Jason White, MDA's "second PhD student" returns to the NMDRC with Senior Appointment   

The early 1990s saw the embryonic days of the MDA's foray into funding research. In a move to expand research efforts, the MDA provided its second PhD scholarship to Jason White.

Following his PhD, Jason moved west to undertake significant research and in the ensuing period he recently returned back home to Melbourne.

To further expand MDA;s commitment to research, two additional PhD scholarships were awarded.

MDA Featured by IANS 

On the 16^th of March IANS will be the festival stage at 12:30 with an Italian cooking lesson featuring Chef Dario D’Agostino and MDA member Dominic Di Battista who is a student of Chef Dario D’Agostino.

MDA's Multilingual Information Service

MDA has added more information on MD to its Multilingual Information Service.

A new comprehensive guide on Charcot-Marie-Tooth (CMT) has been expertly translated into: Spanish.

Aussie actor Nathan Phillips, visits MDA and spends time with the Futures program. 

MDA and Royal Children's Hospital, Neuroscience Centre Announce Significant Sponsorship of Patient Clinic.

The MDA and the Royal Children’s Hospital, Neuroscience Centre recently announced MDA’s significant sponsorship of clinical support services at the RCH.

This includes the sponsorship of a Neuromuscular Clinical Nurse Coordinator who will coordinate the fortnightly MDA Neuromuscular Clinic.

The MDA Neuromuscular Clinic is a multidisciplinary clinic which brings together relevant medical specialties, allied health therapists and other health professionals including direct support by Staff from MDA.

Learn more about preparing for attendance of the MDA Neuromuscular.

Aussie scientist awarded a $1 million research grant to develop innovative gene therapy tools for muscle-related diseases.

Dr Gregorevic commented, "I am very pleased to have been awarded the 2008 Pfizer Australia Research Fellowship. I hope that my research will lead to a better understanding of how muscle diseases develop and thereby help to develop new and effective therapies."

Network Seven News profiled Dr Gregorevic's work in a story on football legend Tom Hafey  with comments by Ryan Struk.

MDA Executive Director Interviewed on National TV's "Sunrise" Program for Newman's Own Foundation Donation

MDA Executive Director Boris M Struk has been recognised as a Paul Newman ‘unsung hero’ as part of the 2007 Newman’s Own Foundation $1 million grant program.

Paul Newman has donated $46,000 to help complete the extensions to the MDA’s holiday house, "Wheelies' Rest".

"Cost of Muscular Dystrophy" Report Launch - Parliament House Canberra

A new report commissioned by the Muscular Dystrophy Association has been released that shows the disease costs the Australian community an estimated $1.5 billion a year. The report, the first of its kind, was prepared by Access Economics and launched by Associate Professor John Gullotta, Chair of the AMA Public Health Committee at Parliament House, Canberra. The Cost of Muscular Dystrophy focuses on the prevalence of muscular dystrophy, the loss of life and well-being and the economic impact of the disorder.

ChallengeMD 2007 Cambodia Team Special Guest of Oz Ambassador


Ambassador Margaret Adamson hosted a special BBQ for the ChallengeMD 2007 Cambodia Team members prior to their departure for the "journey of a lifetime" across Cambodia.

UPDATED with Media Links.

25 Riders Depart to Participate in ChallengeMD 2007 Cambodia

Riders departed on Saturday 20th October, to pedal from Phnom Penh to Siem Reap in Cambodia in support of MD services and research.

Over $400,000 has been raised to date. To help spur the Riders along in the oppressive heat and humidity, in this significant effort for Muscular Dystrophy, we encourage you to log onto the ChallengeMD 2007 website and sponsor a Rider.

Your support will Make a Difference! 

MDA's Multilingual Information Service

MDA has added more information on MD to its Multilingual Information Service.

A new comprehensive guide on DMD has been expertly translated into: Arabic available here.. and Respiratory Issues in Greek available here..

MDA's Multilingual Information Service

MDA has added more information on MD to its Multilingual Information Service.

A new comprehensive guide on DMD has been expertly translated into: Portuguese available here.. and Spanish available here..

MD Benefits from Mackay  "Skilled Golf Day"

Mackay Golf Club played host to the Skilled Muscular Dystrophy Golf Day.

Paddy Pope, chief instigator and organiser, with the magnificent support of many friends and colleagues, ensured that the Skilled Golf Day was a real hit with players.

Feedback from the public and members of the MD community is always welcome, as it assists us to gauge the effectiveness of our programs and services. We use feedback as a tool to tailor services more keenly and to ensure that we are on the right path addressing the communities’ needs, whether it is in response to a respite activity or fundraising event.

Orchestra Victoria entertained an audience exceeding 500 people in the magnificent surrounds of The Great Hall.

Maestro Marko Letonja conducted a program from the Americas including Aaron Copland's Clarinet Concerto, George Gershwin's Rhapsody in Blue and Alberto Ginastera’s Dances from Estancia.

Connex has been a regular supporter of the CampMDA program and recentlyy provided two special trains to transport Campers to various activities around Melbourne.

Musicians4MD Getting together to Fight MD for MD

ChallengeMD! 2007

Wheelies' Rest

The MDA recently purchased a fully accessible holiday house to further enhance its ability to deliver services to the national MD Community.

Visit the Wheelies' Rest site or --->

 Raffle 41 2007 Fat Boy

Support MD & Buy a Pack of Christmas Cards

When you purchase a pack of either Traditional or Contemporary Christmas Cards you are supporting the 1 in 1,000 people in the community affected by MD.

Click here to see the range of cards available.

And why Flinders Street Station?

MDA's annual seminar was a huge success. Proceedings were captured on broadcast quality video and a professional suite of DVD are available for purchase. Contact the MDA on 03 9320 9555 to order your copy. Click here to view Program Details

The Costa Brothers, forced to crawl from a shopping centre to their car, have settled with retail giant Westfield. Forcing a change in the retailer's policy and directing a donation to the MDA. More...

Find out about the MDA's program and the impact that research has had on two students. More...

Click here for further details and Registration process.