Putting Lycra before Wheelchairs
Putting Lycra before Wheelchairs Yesterday, I learned that in the Greens world there are no disabled people. No small feat considering that 1 in 4 Australians has a form of disability. I am outraged at [...]
FSHD Research Projects
Advertising and promoting Facioscapulohumeral dystrophy (FSHD) Research Projects Researchers at The Royal Children’s Hospital are looking for children and adolescents aged 6-18 years who have been diagnosed with FSHD, to participate in one or both [...]
NDIS – The Hurdles encountered – The Project
https://www.youtube.com/watch?v=Dqg2N5w8-Jk&feature=youtu.be
Lord Mayor of Melbourne and Superhero – Sally Capp
“I’ve donned my cape for Superhero week to show my support for all the young superheroes living with muscular dystrophy. Let’s get behind this great cause!” Lord Mayor Sally Capp. MDA Facebook Page
DMD Lifetime Mobility Scale Research Study
DMD Lifetime Mobility Scale Research Study Muscular Dystrophy Australia is assisting the UC Davis Neuromuscular Research Center in USA to seek participants for an online survey about movement and daily living abilities for people with [...]
Diagnosis and Educational Needs are Equally Important
Diagnosis and Educational Needs are Equally Important As a father of a son with Muscular Dystrophy and Muscular Dystrophy Australia’s Executive Director for the last 34 years it is with great interest that I recently [...]
SMA Type 3 Translations – Hindi & Chinese
The latest information on SMA Type 3 has been translated into Chinese and Hindi and is available as a PDF. SMA Type 3 - Chinese PDF SMA Type 3 - Hindi PDF
Clinical trials: Your questions answered
Clinical trials: Your questions answered Promising new treatments for many muscle and nerve conditions have been developed in recent years, promising enough in fact, for pharmaceutical companies and other funding bodies to invest in expensive [...]