World-first Christmas campaign gives children a reason to smile
A partnership between young children living with the devastating disorder Muscular Dystrophy (MD) and a group of engineers at Monash University has resulted in a world-first Christmas campaign – complete with environmentally-friendly 3D Christmas decorations. [...]
The latest Translation Duchenne MD – Maltese
The latest information on Duchenne MD has been translated into Maltese and is available as a PDF. DMD-Maltese PDF
The latest Translation SMA Type 3 – Hindi
The latest information on SMA TYpe 3 has been translated into Hindi and is available as a PDF. SMA Type 3 - Hindi
The latest Translation LGD to Russian
The latest information on LGD has been translated into Russian and is available as a PDF. Limb Girdle in Russian PDF
Latest Translation – FSHD – Nepali
The latest information on FSHD has been translated into Nepali and is available as a PDF. Nepal Translation FSHD
Australia Post – we deliver. Sometimes…
Australia Post – we deliver. Sometimes... I read a few months ago that there were more than 1.1 million complaints to Australia Post in 2016-2017 and that figure was actually down by 30% over the [...]
Live Q&A Brings Renewed Hope
Live Q&A Brings Renewed Hope Last night the Australian Regenerative Medicine Institute (ARMI), Monash University and Muscular Dystrophy Australia held a Facebook Live Q&A “You Ask We Answer” event where the MD community had the [...]
Putting Lycra before Wheelchairs
Putting Lycra before Wheelchairs Yesterday, I learned that in the Greens world there are no disabled people. No small feat considering that 1 in 4 Australians has a form of disability. I am outraged at [...]
FSHD Research Projects
Advertising and promoting Facioscapulohumeral dystrophy (FSHD) Research Projects Researchers at The Royal Children’s Hospital are looking for children and adolescents aged 6-18 years who have been diagnosed with FSHD, to participate in one or both [...]