Brandon has been growing his dreadlocks for over five years and this October, he is going to shave them all off! In what Brandon is calling Dreadlocks for Dystrophy, he will be attending October CampMDA [...]
Two of our ChallengeMD! 2017 Goldfields Bike Ride participants Ros and Lloyd held a trivia night at the Lions Club of Ocean Grove Barwon Heads and incredibly raised over $9,000 towards their total for ChallengeMD [...]
Congratulations to the winner of our Harley Raffle #62 Scott from Kanwal, NSW! The winning ticket number was #5763. Scott started buying tickets in MDA's famous Harley Davidson Raffle back in 2003 during the Open [...]
Launch of National Duchenne Muscular Dystrophy Register On Monday November 15th 2010, the Director General of Health launched the Duchenne Muscular Dystrophy (DMD) Registry. Patient registries are infrastructure that supports clinical and translational research. The [...]
MDA was in the Sunday Age as well as online in the Sydney Morning Herald and The Age online talking about the importance of NDIS funding student placements, so respite programs such as CampMDA can [...]
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Chantal Coles PhD NMDRC provides a Research Update... On September 19th last year the U.S Food and Drug Administration (FDA) approved the first drug for the treatment of Duchenne Muscular Dystrophy, called EXONDYS 51™. This [...]
Recently, Dr. Jason White, lead researcher at the National Muscular Dystrophy Research Centre (NDMRC) at the Murdoch Children’s Research Institute, returned from six months of research in Vancouver, Canada. The purpose of this trip was [...]