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Home Page2018-06-10T21:52:10+00:00
2502, 2019

DMD Clinical Trials

February 25th, 2019|Categories: information, research, trials|Tags: , , , , |

DMD Clinical Trials Our friends at Neoclinical are looking for Australian boys over 5yo with #duchennemusculardystrophy to participate in an #australianfirst clinical trial. The trial medication has not previously been available for #DMD and is [...]

2301, 2019

Response to ‘fines for life-support power cuts’

January 23rd, 2019|Categories: Media|Tags: , , , |

Response to ‘fines for life-support power cuts’ Headlines such as “Fines for life-support power cuts” (The Age, 23/1) make me shudder. My son has Duchenne, the severest form of muscular dystrophy, and relies on a [...]

1801, 2019

MDA the original lifeline for people with Muscular Dystrophy

January 18th, 2019|Categories: Uncategorised|Tags: , , , |

For more than 35 years, Muscular Dystrophy Australia (MDA) has been delivering personalised support and services to the muscular dystrophy community, nationwide and beyond. It is over those decades that MDA has forged invaluable relationships [...]

1611, 2018

World-first Christmas campaign gives children a reason to smile

November 16th, 2018|Categories: Event, fundraising, Media, news, research|Tags: , , , , |

A partnership between young children living with the devastating disorder Muscular Dystrophy (MD) and a group of engineers at Monash University has resulted in a world-first Christmas campaign – complete with environmentally-friendly 3D Christmas decorations. [...]

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