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1611, 2018

World-first Christmas campaign gives children a reason to smile

November 16th, 2018|Categories: Event, fundraising, Media, news, research|Tags: , , , , |

A partnership between young children living with the devastating disorder Muscular Dystrophy (MD) and a group of engineers at Monash University has resulted in a world-first Christmas campaign – complete with environmentally-friendly 3D Christmas decorations. [...]

1610, 2018

Australia Post – we deliver. Sometimes…

October 16th, 2018|Categories: Boris M Struk, Media, news|Tags: , , , , , |

Australia Post – we deliver. Sometimes... I read a few months ago that there were more than 1.1 million complaints to Australia Post in 2016-2017 and that figure was actually down by 30% over the [...]

410, 2018

Live Q&A Brings Renewed Hope

October 4th, 2018|Categories: Boris M Struk, disorders, Event, information, news, presentation, research|Tags: , , , , , |

Live Q&A Brings Renewed Hope Last night the Australian Regenerative Medicine Institute (ARMI), Monash University and Muscular Dystrophy Australia held a Facebook Live Q&A “You Ask We Answer” event where the MD community had the [...]

1409, 2018

Putting Lycra before Wheelchairs

September 14th, 2018|Categories: Boris M Struk, Media, news, policies|Tags: , , , , , |

Putting Lycra before Wheelchairs Yesterday, I learned that in the Greens world there are no disabled people. No small feat considering that 1 in 4 Australians has a form of disability. I am outraged at [...]

1409, 2018

FSHD Research Projects

September 14th, 2018|Categories: disorders, research, trials|Tags: , , , , , |

Advertising and promoting Facioscapulohumeral dystrophy (FSHD) Research Projects Researchers at The Royal Children’s Hospital are looking for children and adolescents aged 6-18 years who have been diagnosed with FSHD, to participate in one or both [...]

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