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1610, 2018

Australia Post – we deliver. Sometimes…

October 16th, 2018|Categories: Boris M Struk, Media, news|Tags: , , , , , |

Australia Post – we deliver. Sometimes... I read a few months ago that there were more than 1.1 million complaints to Australia Post in 2016-2017 and that figure was actually down by 30% over the [...]

410, 2018

Live Q&A Brings Renewed Hope

October 4th, 2018|Categories: Boris M Struk, disorders, Event, information, news, presentation, research|Tags: , , , , , |

Live Q&A Brings Renewed Hope Last night the Australian Regenerative Medicine Institute (ARMI), Monash University and Muscular Dystrophy Australia held a Facebook Live Q&A “You Ask We Answer” event where the MD community had the [...]

1409, 2018

Putting Lycra before Wheelchairs

September 14th, 2018|Categories: Boris M Struk, Media, news, policies|Tags: , , , , , |

Putting Lycra before Wheelchairs Yesterday, I learned that in the Greens world there are no disabled people. No small feat considering that 1 in 4 Australians has a form of disability. I am outraged at [...]

1409, 2018

FSHD Research Projects

September 14th, 2018|Categories: disorders, research, trials|Tags: , , , , , |

Advertising and promoting Facioscapulohumeral dystrophy (FSHD) Research Projects Researchers at The Royal Children’s Hospital are looking for children and adolescents aged 6-18 years who have been diagnosed with FSHD, to participate in one or both [...]

309, 2018

Lord Mayor of Melbourne and Superhero – Sally Capp

September 3rd, 2018|Categories: ambassador, Event, fundraising, news|Tags: , , , , , , , , |

“I’ve donned my cape for Superhero week to show my support for all the young superheroes living with muscular dystrophy. Let’s get behind this great cause!” Lord Mayor Sally Capp. MDA Facebook Page

1608, 2018

DMD Lifetime Mobility Scale Research Study

August 16th, 2018|Categories: disorders, research, trials|Tags: , , , , |

DMD Lifetime Mobility Scale Research Study Muscular Dystrophy Australia is assisting the UC Davis Neuromuscular Research Center in USA to seek participants for an online survey about movement and daily living abilities for people with [...]

1008, 2018

Diagnosis and Educational Needs are Equally Important

August 10th, 2018|Categories: Boris M Struk, news, policies|Tags: , , , , |

Diagnosis and Educational Needs are Equally Important As a father of a son with Muscular Dystrophy and Muscular Dystrophy Australia’s Executive Director for the last 34 years it is with great interest that I recently [...]

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