For more than 35 years, Muscular Dystrophy Australia (MDA) has been delivering personalised support and services to the muscular dystrophy community, nationwide and beyond.
It is over those decades that MDA has forged invaluable relationships within the Royal Children’s Hospital and the research fraternity, where MDA supports and funds several staff at the Neuromuscular Clinic, a world cutting-edge and one-stop-clinic.
Newly diagnosed people with muscular dystrophy and their families can feel quite overwhelmed and confused about finding the right support and referrals. As subject matter experts (SME) we have the knowledge and expertise to provide support from “day one” of a new diagnosis and the onward journey living with a neuromuscular disorder.
We are the interface between the hospital, research and other support services and the affected individual. We have invested more than $2 million in the support of the WHOLE MD Community through these services.
As the peak body for Duchenne MD (DMD) and any of the other 60 neuromuscular disorders we are well placed to support the MD Community. Collectively, MD affects 1:625 people and the following maps of Greater Melbourne, Victoria and NSW clearly shows the breadth and depth of our service delivery model.
Australia’s current health system is well equipped for common disorders and diseases but not so much for less known conditions such as muscular dystrophy.
MDA offers expertise advice on the 60 plus muscular dystrophies. People diagnosed with any types of muscular dystrophies can contact the Client Services team at MDA and get prompt, accurate and expert personalised advice. MDA’s team keeps regularly in touch with families, offering advice and sometimes just a friendly ear as the journey through muscular dystrophy can be a lonely one, for all involved.
MDA is your first point of contact as well as your lifelong partner.
Contact MDA Client Services for more information or support on 03 9320 9555 or ClientServices@mda.org.au