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1409, 2018

Putting Lycra before Wheelchairs

September 14th, 2018|Categories: Boris M Struk, Media, news, policies|Tags: , , , , , |

Putting Lycra before Wheelchairs Yesterday, I learned that in the Greens world there are no disabled people. No small feat considering that 1 in 4 Australians has a form of disability. I am outraged at [...]

1409, 2018

FSHD Research Projects

September 14th, 2018|Categories: disorders, research, trials|Tags: , , , , , |

Advertising and promoting Facioscapulohumeral dystrophy (FSHD) Research Projects Researchers at The Royal Children’s Hospital are looking for children and adolescents aged 6-18 years who have been diagnosed with FSHD, to participate in one or both [...]

309, 2018

Lord Mayor of Melbourne and Superhero – Sally Capp

September 3rd, 2018|Categories: ambassador, Event, fundraising, news|Tags: , , , , , , , , |

“I’ve donned my cape for Superhero week to show my support for all the young superheroes living with muscular dystrophy. Let’s get behind this great cause!” Lord Mayor Sally Capp. MDA Facebook Page

1608, 2018

DMD Lifetime Mobility Scale Research Study

August 16th, 2018|Categories: disorders, research, trials|Tags: , , , , |

DMD Lifetime Mobility Scale Research Study Muscular Dystrophy Australia is assisting the UC Davis Neuromuscular Research Center in USA to seek participants for an online survey about movement and daily living abilities for people with [...]

1008, 2018

Diagnosis and Educational Needs are Equally Important

August 10th, 2018|Categories: Boris M Struk, news, policies|Tags: , , , , |

Diagnosis and Educational Needs are Equally Important As a father of a son with Muscular Dystrophy and Muscular Dystrophy Australia’s Executive Director for the last 34 years it is with great interest that I recently [...]

307, 2018

SMA Type 3 Translations – Hindi & Chinese

July 3rd, 2018|Categories: atrophies, disorders, information, Translations|Tags: , , , |

The latest information on SMA Type 3 has been translated into Chinese and Hindi and is available as a PDF. SMA Type 3 - Chinese PDF SMA Type 3 - Hindi PDF  

207, 2018

Clinical trials: Your questions answered

July 2nd, 2018|Categories: disorders, research, trials|Tags: , , , , |

Clinical trials: Your questions answered Promising new treatments for many muscle and nerve conditions have been developed in recent years, promising enough in fact, for pharmaceutical companies and other funding bodies to invest in expensive [...]

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