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So far Boris M Struk has created 145 blog entries.

DMD Clinical Trials

DMD Clinical Trials Our friends at Neoclinical are looking for Australian boys over 5yo with #duchennemusculardystrophy to participate in an #australianfirst clinical trial. The trial medication has not previously been available for #DMD and is hoping to improve boys quality of life. If you are interested, or for more information please contact Megan@neoclinical.com #musculardystrophyaustralia #duchenne [...]

By |2019-02-25T09:58:30+00:00February 25th, 2019|information, research, trials|0 Comments

Response to ‘fines for life-support power cuts’

Response to ‘fines for life-support power cuts’ Headlines such as “Fines for life-support power cuts” (The Age, 23/1) make me shudder. My son has Duchenne, the severest form of muscular dystrophy, and relies on a ventilator to stay alive. Over recent years, several people with muscular dystrophy have lost their lives to mis-managed power outages. [...]

By |2019-01-23T16:02:25+00:00January 23rd, 2019|Media|0 Comments

MDA the original lifeline for people with Muscular Dystrophy

For more than 35 years, Muscular Dystrophy Australia (MDA) has been delivering personalised support and services to the muscular dystrophy community, nationwide and beyond. It is over those decades that MDA has forged invaluable relationships within the Royal Children’s Hospital and the research fraternity, where MDA supports and funds several staff at the Neuromuscular Clinic, [...]

By |2019-01-20T23:16:32+00:00January 18th, 2019|Uncategorised|0 Comments

Major Bequest to MDA

Major Bequest to MDA We are extremely grateful to the Hamer family who have been long-time supporters of MDA. The late Kevin Hamer’s nieces: Georgina, Bethany and Caitlyn, came in to MDA HQ to present a bequest of $200K which will help MDA deliver its programs, services and fund research. MDA Executive Director, Boris M [...]

By |2018-11-28T17:38:16+00:00November 28th, 2018|fundraising, news, presentation, research|0 Comments

World-first Christmas campaign gives children a reason to smile

A partnership between young children living with the devastating disorder Muscular Dystrophy (MD) and a group of engineers at Monash University has resulted in a world-first Christmas campaign – complete with environmentally-friendly 3D Christmas decorations. Little Miracles

By |2018-11-16T14:40:20+00:00November 16th, 2018|Event, fundraising, Media, news, research|0 Comments