Action Plan for rare diseases like muscular dystrophies

We celebrate the launch this week of the first National Strategic Action Plan for Rare Diseases and look forward to collaborating with others in the sector to ensure the voices of people living with rarer diseases, like muscular dystrophies, are heard. The launch of the Action Plan coincides with Rare Disease Day on 29th February [...]

Huge turnout for Run for Strength 2020

‘There’s been a show of strength in support of people living with muscular dystrophy.’ Australian television presenter, Kristy Mayr and hundreds of Melbournians and interstate visitors ran and walked alongside those who can’t at Muscular Dystrophy Australia’s annual Run for Strength in Albert Park last Sunday. The inaugural Run for Strength event, first held in [...]

Run for Strength 2020 – Sign up on the day!

Run for Strength 2020 Join Australian television presenter Kristy Mayr and a host of enthusiastic runners and walkers at the 2020 Run for Strength fun run at Albert Park Lake, raising funds and awareness for Muscular Dystrophy Australia. Sign up in person on the day! Event’s details: Date: Sunday February 16, 2020 Location: Palm Lawns, [...]

Life Membership bestowed on Boris M Struk

Life Membership bestowed on Boris M Struk Pitcher Partners recently hosted a function to honour Boris M Struk’s illustrious contribution to muscular dystrophy as founder and recently retired inaugural Executive Director of Muscular Dystrophy Australia. Prof Andrew Kornberg with Boris M Struk Bill Schlink, President of Committee Management, MDA, spoke of Boris’ commitment at the retirement [...]