Clinical trials: Your questions answered

Clinical trials: Your questions answered Promising new treatments for many muscle and nerve conditions have been developed in recent years, promising enough in fact, for pharmaceutical companies and other funding bodies to invest in expensive clinical trials. On average only about one fifth of treatments that go to clinical trial are proven to be safe [...]

By | 2018-07-02T15:14:44+00:00 July 2nd, 2018|disorders, research, trials|0 Comments

Looking Back and Moving Forward

Launch of National Duchenne Muscular Dystrophy Register On Monday November 15th 2010, the Director General of Health launched the Duchenne Muscular Dystrophy (DMD) Registry. Patient registries are infrastructure that supports clinical and translational research. The DMD registry was created in response to developments in genetic technology and in particular clinical trials currently being planned, that [...]

By | 2017-06-28T17:30:17+00:00 June 28th, 2017|disorders, information, news, research, trials|0 Comments

Spinal Muscular Atrophy (SMA) Research Update

Spinal Muscular Atrophy (SMA) Research update and treatment - AUSTRALIA A research update by Prof. Monique Ryan Director, Department of Neurology Group Leader, Murdoch Children's Research Institute,  Royal Children's Hospital There has been a lot of activity in the clinical trial space for SMA in the last two years. Two hospitals in Australia- the The [...]

By | 2018-06-01T03:49:11+00:00 November 17th, 2016|atrophies, research, trials|0 Comments

EducationMD 2015

EducationMD builds a bond between educators and children with MD MDA National Centre 111 Boundary Road North Melbourne Friday, 8 May 2015, saw the Muscular Dystrophy Australia (MDA) Head Office in North Melbourne turn into a hive of activity when the annual EducationMD seminar brought together a group of more than 35 education and health [...]

By | 2018-06-01T03:49:21+00:00 May 8th, 2015|disorders, information, Media, news, research|0 Comments

Education Seminar 2012

MDA National Centre 111 Boundary Road North Melbourne MD Education Seminar 2012 - a comprehensive multidisciplinary seminar, presented the latest and up to date information for anyone involved with students in the education system who are affected by Muscular Dystrophy MD Education Seminar 2012 saw Teachers, Aides, Principals descend upon the MDA Centre from all [...]

By | 2016-10-03T14:51:26+00:00 October 25th, 2012|atrophies, disorders, Event, information, presentation|Comments Off on Education Seminar 2012

Asian Oceanian Myology Centre

MDA Hosts two significant Meetings 7th Scientific Meeting & InformationMD! 2008 Melbourne played host to two major meetings on the 13th and 14th November 2008 at the Lanham Melbourne located on the banks of the Yarra at Southbank. The 7th AOMC Scientific Meeting attracted scientists and clinicians from the Asia Pacific region with an excellent [...]

By | 2016-10-03T15:15:35+00:00 October 12th, 2008|disorders, Event, information, Media, news, presentation, research, Support Services|Comments Off on Asian Oceanian Myology Centre