trials

MDA Supporting new Research project at Monash University

MDA Supporting new Research project at Monash University The Myopathy Research Team in at Monash University is looking for a PhD student to work on an exciting new project, funded by Muscular Dystrophy Australia www.mda.org.au and supervised by Dr Tamar Sztal. The aim of the project is to study inflammation in Duchenne Muscular Dystrophy (DMD) [...]

By |2019-04-23T22:54:52+10:00April 11th, 2019|information, research, trials|0 Comments

Muscular Dystrophy Australia is your One-Stop-Shop

Dr Chantal Coles, Boris M Struk, Prof Kathryn North AC, and Chris Kintakis Muscular Dystrophy Australia is your one-stop-shop for expert information, support, research and trials. MDA works tirelessly to support clinical trials and expand clinical trial capacity for Australia. We have been on the Steering Committee of the National Registries for more than a [...]

By |2019-04-23T23:14:32+10:00April 5th, 2019|ambassador, Boris M Struk, news, research, trials|0 Comments

MDA – Hope in Research

MDA - Hope in Research MDA’s core mission is to provide support and hope to the MD community. We fund numerous research projects and trials in the hope that the quality of life of people with MD will improve and that eventually a cure will be found. #musculardystrophyaustralia #duchenne #duchenneawareness #clinicaltrials #raredisease #hope #cure4MD #research [...]

By |2019-04-15T12:13:45+10:00February 25th, 2019|information, research, trials|0 Comments

FSHD Research Projects

Advertising and promoting Facioscapulohumeral dystrophy (FSHD) Research Projects Researchers at The Royal Children’s Hospital are looking for children and adolescents aged 6-18 years who have been diagnosed with FSHD, to participate in one or both of these studies: The effect of the nutritional supplement (creatine monohydrate) on strength and muscle mass in children with FSHD [...]

By |2018-09-14T09:40:25+10:00September 14th, 2018|disorders, research, trials|0 Comments

DMD Lifetime Mobility Scale Research Study

DMD Lifetime Mobility Scale Research Study Muscular Dystrophy Australia is assisting the UC Davis Neuromuscular Research Center in USA to seek participants for an online survey about movement and daily living abilities for people with Duchenne muscular dystrophy. The Duchenne Muscular Dystrophy Life-Time Mobility Scale (DMD-LMS) is a set of questions that ask about how [...]

By |2018-08-16T18:28:09+10:00August 16th, 2018|disorders, research, trials|0 Comments

Victorian Muscle Network Symposium

Victorian Muscle Network Symposium l-r - Prof Peter Currie, Prof Andrea Maier, Boris M Struk, Prof Gordon Lynch & Prof Kathryn North The Inaugural Victorian Muscle Network Symposium was held at Bio21 yesterday (19th June 2018) prior to the Annual Meeting of the International Society for Stem Cell Research (ISSCR). International speakers presenting included Prof [...]

By |2018-06-20T23:18:58+10:00June 20th, 2018|Boris M Struk, presentation, research, trials|0 Comments

MDA’s $1,000,000 Making a Difference

MDA Support of “Muscle Clinic” at RCH exceeds $1,000,000 creating world’s first dedicated multi-disciplinary Clinic Sometimes we need a reminder to realise just how far Muscular Dystrophy Australia’s support of the MD Community extends. The relationship between the MDA and RCH goes back some 26 years, when MDA was funding a dedicated MD Social Worker [...]

By |2018-06-01T03:49:05+10:00September 13th, 2017|about, information, news, research, Support Services, trials|0 Comments

Looking Back and Moving Forward

Launch of National Duchenne Muscular Dystrophy Register On Monday November 15th 2010, the Director General of Health launched the Duchenne Muscular Dystrophy (DMD) Registry. Patient registries are infrastructure that supports clinical and translational research. The DMD registry was created in response to developments in genetic technology and in particular clinical trials currently being planned, that [...]

By |2017-06-28T17:30:17+10:00June 28th, 2017|disorders, information, news, research, trials|0 Comments