We celebrate the launch this week of the first National Strategic Action Plan for Rare Diseases and look forward to collaborating with others in the sector to ensure the voices of people living with rarer diseases, like muscular dystrophies, are heard. The launch of the Action Plan coincides with Rare Disease Day on 29th February [...]
‘There’s been a show of strength in support of people living with muscular dystrophy.’ Australian television presenter, Kristy Mayr and hundreds of Melbournians and interstate visitors ran and walked alongside those who can’t at Muscular Dystrophy Australia’s annual Run for Strength in Albert Park last Sunday. The inaugural Run for Strength event, first held in [...]
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The ABC recently spent time with MDA founder and ambassador, Boris M Struk, and his family documenting his achievements since setting up Australia’s first muscular dystrophy support organisation over 30 years ago. It is with great pride that we share with you this powerful story, now available on ABC iView and which starts at the [...]
Life Membership bestowed on Boris M Struk Pitcher Partners recently hosted a function to honour Boris M Struk’s illustrious contribution to muscular dystrophy as founder and recently retired inaugural Executive Director of Muscular Dystrophy Australia. Prof Andrew Kornberg with Boris M Struk Bill Schlink, President of Committee Management, MDA, spoke of Boris’ commitment at the retirement [...]
THRIVING TOGETHER - to Engage + Connect in a meaningful way Partnering with Muscular Dystrophy Australia offers your business a tremendous way to show your stakeholders, staff, customers and prospects that you are supporting communities across Australia, by giving to people living with life-limiting or debilitating conditions support, quality of life and control. MDA’s annual [...]
Levi Casboult & Superhero Week “It’s a privilege to be able to help raise awareness for superhero week. The young children affected by Muscular Dystrophy and their families are a true example of strength, courage and resilience. All characteristics of superheroes. From September 2rd - September 8th dress up as your favourite superhero and donate [...]
Rotary International Radio Interview MDA Executive Director, Boris M Struk, made a guest appearance on Rotary Radio 96.5 FM and spent the hour with Bernadette Schwerdt talking Muscular Dystrophy, Rotary and a host of other subjects. With a vast audience, the radio medium provided a fantastic opportunity to communicate to the public the challenges that [...]