Response to ‘fines for life-support power cuts’ Headlines such as “Fines for life-support power cuts” (The Age, 23/1) make me shudder. My son has Duchenne, the severest form of muscular dystrophy, and relies on a ventilator to stay alive. Over recent years, several people with muscular dystrophy have lost their lives to mis-managed power outages. [...]
A partnership between young children living with the devastating disorder Muscular Dystrophy (MD) and a group of engineers at Monash University has resulted in a world-first Christmas campaign – complete with environmentally-friendly 3D Christmas decorations. Little Miracles
Australia Post – we deliver. Sometimes... I read a few months ago that there were more than 1.1 million complaints to Australia Post in 2016-2017 and that figure was actually down by 30% over the last previous two years. Apparently the drop did not indicate an improvement in customer service. This implies that people probably [...]
Putting Lycra before Wheelchairs Yesterday, I learned that in the Greens world there are no disabled people. No small feat considering that 1 in 4 Australians has a form of disability. I am outraged at the lack of inclusion and total selfishness that the Greens Councillors are displaying. Our community needs more help getting around, [...]
https://www.youtube.com/watch?v=Dqg2N5w8-Jk&feature=youtu.be
Following a very successful two consecutive years taking ChallengeMD! Goldfields through the Victorian Goldfields Region, the bike ride returns for 2018! Running from Thursday 27th September – Sunday 30th September, ChallengeMD! Goldfields is a four day fully-supported charity cycling tour through Victoria’s wonderfully historic and nostalgic Goldfield region. The 450km route takes participants through Bacchus [...]
Superheroes event at Club Central Menai raises $717 for Muscular Dystrophy Australia Aspiring superheroes had heaps of fun while raising money for a great cause during a school holiday event at Club Central Menai. Kids dressed up as their favourite character, had masks painted on their faces and dived into a variety of activities, the most popular of [...]
Music to our Ears Boris M Struk, Executive Director, Muscular Dystrophy Australia, is proud to announce that International Opera Singer, Christiana Aloneftis, has accepted a role as MDA Ambassador. Christiana is originally from Melbourne and recently graduated with full-scholarship from the École Normale de Musique Alfred Cortot, Paris. She has performed a variety of principal [...]
