research

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DMD Clinical Trials

DMD Clinical Trials Our friends at Neoclinical are looking for Australian boys over 5yo with #duchennemusculardystrophy to participate in an #australianfirst clinical trial. The trial medication has not previously been available for #DMD and is hoping to improve boys quality of life. If you are interested, or for more information please contact Megan@neoclinical.com #musculardystrophyaustralia #duchenne [...]

By |2019-02-25T09:58:30+00:00February 25th, 2019|information, research, trials|0 Comments

Major Bequest to MDA

Major Bequest to MDA We are extremely grateful to the Hamer family who have been long-time supporters of MDA. The late Kevin Hamer’s nieces: Georgina, Bethany and Caitlyn, came in to MDA HQ to present a bequest of $200K which will help MDA deliver its programs, services and fund research. MDA Executive Director, Boris M [...]

By |2018-11-28T17:38:16+00:00November 28th, 2018|fundraising, news, presentation, research|0 Comments

World-first Christmas campaign gives children a reason to smile

A partnership between young children living with the devastating disorder Muscular Dystrophy (MD) and a group of engineers at Monash University has resulted in a world-first Christmas campaign – complete with environmentally-friendly 3D Christmas decorations. Little Miracles

By |2018-11-16T14:40:20+00:00November 16th, 2018|Event, fundraising, Media, news, research|0 Comments

Live Q&A Brings Renewed Hope

Live Q&A Brings Renewed Hope Last night the Australian Regenerative Medicine Institute (ARMI), Monash University and Muscular Dystrophy Australia held a Facebook Live Q&A “You Ask We Answer” event where the MD community had the opportunity to have their questions answered in real time by a panel of experts in MD. The panel included: Boris [...]

FSHD Research Projects

Advertising and promoting Facioscapulohumeral dystrophy (FSHD) Research Projects Researchers at The Royal Children’s Hospital are looking for children and adolescents aged 6-18 years who have been diagnosed with FSHD, to participate in one or both of these studies: The effect of the nutritional supplement (creatine monohydrate) on strength and muscle mass in children with FSHD [...]

By |2018-09-14T09:40:25+00:00September 14th, 2018|disorders, research, trials|0 Comments

DMD Lifetime Mobility Scale Research Study

DMD Lifetime Mobility Scale Research Study Muscular Dystrophy Australia is assisting the UC Davis Neuromuscular Research Center in USA to seek participants for an online survey about movement and daily living abilities for people with Duchenne muscular dystrophy. The Duchenne Muscular Dystrophy Life-Time Mobility Scale (DMD-LMS) is a set of questions that ask about how [...]

By |2018-08-16T18:28:09+00:00August 16th, 2018|disorders, research, trials|0 Comments

Victorian Muscle Network Symposium

Victorian Muscle Network Symposium l-r - Prof Peter Currie, Prof Andrea Maier, Boris M Struk, Prof Gordon Lynch & Prof Kathryn North The Inaugural Victorian Muscle Network Symposium was held at Bio21 yesterday (19th June 2018) prior to the Annual Meeting of the International Society for Stem Cell Research (ISSCR). International speakers presenting included Prof [...]

By |2018-06-20T23:18:58+00:00June 20th, 2018|Boris M Struk, presentation, research, trials|0 Comments