Living with Limb Girdle Muscular Dystrophy An MDA Client perspective - Peter G. I am writing this article in the hope that others may see the way I cope with LGMD and that my approach may be of help to others. My situation: I am a 71 year old male who has late onset LGMD [...]
EducationMD! 2019 EducationMD! A hundred teachers and teacher aides attended an education seminar today at MDA HQ. The event was a resounding success and introduced a wide range of of speakers including Professor Monique Ryan from The Royal Children's Hospital, Melbourne and MDA Executive Director, Boris M Struk.
MDA Support of “Muscle Clinic” at RCH exceeds $1,000,000 creating world’s first dedicated multi-disciplinary Clinic Sometimes we need a reminder to realise just how far Muscular Dystrophy Australia’s support of the MD Community extends. The relationship between the MDA and RCH goes back some 26 years, when MDA was funding a dedicated MD Social Worker [...]
All great changes are preceded by uncertainty With the roll-out of the NDIS, the service delivery landscape in the disability sector will forever change in Australia. For some, this change will bring a certainty in the sourcing of support services while for others it will raise unrealistic expectations of what the NDIS will provide to [...]
Annual Christmas Party 2008 Despite the rain that only Melbourne could provide in December, MDA enthusiastically hosted its annual Christmas Party for the MD Community. This year was in a wonderful (and dry!) pavilion at the legendary Moonee Valley Racing Club. With special visits from Santa and his elves, as well as a couple of [...]
Marvelous Music for Muscular Dystrophy MDA partners with Orchestra Victoria, NGV International for the staging of the our 2008 event. The Great Hall, NGV International saw a capacity crowd exceeding 500 people attend the launch of MD Awareness Month at a free concert. Australian soprano Emma Matthews joined Orchestra Victoria in a special performance of [...]
MDA Hosts two significant Meetings 7th Scientific Meeting & InformationMD! 2008 Melbourne played host to two major meetings on the 13th and 14th November 2008 at the Lanham Melbourne located on the banks of the Yarra at Southbank. The 7th AOMC Scientific Meeting attracted scientists and clinicians from the Asia Pacific region with an excellent [...]