disorders

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Live Q&A Brings Renewed Hope

Live Q&A Brings Renewed Hope Last night the Australian Regenerative Medicine Institute (ARMI), Monash University and Muscular Dystrophy Australia held a Facebook Live Q&A “You Ask We Answer” event where the MD community had the opportunity to have their questions answered in real time by a panel of experts in MD. The panel included: Boris [...]

FSHD Research Projects

Advertising and promoting Facioscapulohumeral dystrophy (FSHD) Research Projects Researchers at The Royal Children’s Hospital are looking for children and adolescents aged 6-18 years who have been diagnosed with FSHD, to participate in one or both of these studies: The effect of the nutritional supplement (creatine monohydrate) on strength and muscle mass in children with FSHD [...]

By |2018-09-14T09:40:25+00:00September 14th, 2018|disorders, research, trials|0 Comments

Clinical trials: Your questions answered

Clinical trials: Your questions answered Promising new treatments for many muscle and nerve conditions have been developed in recent years, promising enough in fact, for pharmaceutical companies and other funding bodies to invest in expensive clinical trials. On average only about one fifth of treatments that go to clinical trial are proven to be safe [...]

By |2018-07-02T15:14:44+00:00July 2nd, 2018|disorders, research, trials|0 Comments

MDA and the NAA

Muscular Dystrophy Australia is one of more than 10 organisations in Australia who is part of The Neurological Alliance Australia (NAA). On March 22, these organisations (including MS Australia, MND Australia and Parkinson’s Australia) met in Canberra to launch the NAA’s joint statement on the NDIS. The Neurological Alliance Australia (NAA) believes that the National [...]

By |2018-06-01T03:49:09+00:00March 22nd, 2017|information, news, presentation|0 Comments