/Tag: disorders

FSHD Research Projects

Advertising and promoting Facioscapulohumeral dystrophy (FSHD) Research Projects Researchers at The Royal Children’s Hospital are looking for children and adolescents aged 6-18 years who have been diagnosed with FSHD, to participate in one or both of these studies: The effect of the nutritional supplement (creatine monohydrate) on strength and muscle mass in children with FSHD [...]

By |2018-09-14T09:40:25+00:00September 14th, 2018|disorders, research, trials|0 Comments

Clinical trials: Your questions answered

Clinical trials: Your questions answered Promising new treatments for many muscle and nerve conditions have been developed in recent years, promising enough in fact, for pharmaceutical companies and other funding bodies to invest in expensive clinical trials. On average only about one fifth of treatments that go to clinical trial are proven to be safe [...]

By |2018-07-02T15:14:44+00:00July 2nd, 2018|disorders, research, trials|0 Comments

MDA and the NAA

Muscular Dystrophy Australia is one of more than 10 organisations in Australia who is part of The Neurological Alliance Australia (NAA). On March 22, these organisations (including MS Australia, MND Australia and Parkinson’s Australia) met in Canberra to launch the NAA’s joint statement on the NDIS. The Neurological Alliance Australia (NAA) believes that the National [...]

By |2018-06-01T03:49:09+00:00March 22nd, 2017|information, news, presentation|0 Comments

Spinal Muscular Atrophy (SMA) Research Update

Spinal Muscular Atrophy (SMA) Research update and treatment - AUSTRALIA A research update by Prof. Monique Ryan Director, Department of Neurology Group Leader, Murdoch Children's Research Institute,  Royal Children's Hospital There has been a lot of activity in the clinical trial space for SMA in the last two years. Two hospitals in Australia- the The [...]

By |2018-06-01T03:49:11+00:00November 17th, 2016|atrophies, research, trials|0 Comments

Becker MD

What is Becker muscular dystrophy? There are many types of muscular dystrophy (MD), all are genetic conditions that cause the muscles to weaken and waste away to varying degrees. Becker MD is a milder, more slowly progressing variant of the better known Duchenne type of MD. Like Duchenne MD it only affects males (with very [...]

By |2018-06-01T03:47:57+00:00July 23rd, 2016|Comments Off on Becker MD