disorders

/Tag: disorders

MDA the original lifeline for people with Muscular Dystrophy

For more than 35 years, Muscular Dystrophy Australia (MDA) has been delivering personalised support and services to the muscular dystrophy community, nationwide and beyond. It is over those decades that MDA has forged invaluable relationships within the Royal Children’s Hospital and the research fraternity, where MDA supports and funds several staff at the Neuromuscular Clinic, [...]

By |2019-01-20T23:16:32+00:00January 18th, 2019|Uncategorised|0 Comments

Steroids for Duchenne MD

Steroids for Duchenne MD: the pros and cons. For over 20 years boys with Duchenne muscular dystrophy (MD) have been treated with steroids, which is currently the only medication proven to slow the progression of the condition. In Australia, more than 90 percent of boys with Duchenne MD are now treated with steroids but this [...]

By |2018-11-25T15:59:53+00:00November 25th, 2018|Comments Off on Steroids for Duchenne MD

Live Q&A Brings Renewed Hope

Live Q&A Brings Renewed Hope Last night the Australian Regenerative Medicine Institute (ARMI), Monash University and Muscular Dystrophy Australia held a Facebook Live Q&A “You Ask We Answer” event where the MD community had the opportunity to have their questions answered in real time by a panel of experts in MD. The panel included: Boris [...]

FSHD Research Projects

Advertising and promoting Facioscapulohumeral dystrophy (FSHD) Research Projects Researchers at The Royal Children’s Hospital are looking for children and adolescents aged 6-18 years who have been diagnosed with FSHD, to participate in one or both of these studies: The effect of the nutritional supplement (creatine monohydrate) on strength and muscle mass in children with FSHD [...]

By |2018-09-14T09:40:25+00:00September 14th, 2018|disorders, research, trials|0 Comments