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Response to ‘fines for life-support power cuts’

Response to ‘fines for life-support power cuts’ Headlines such as “Fines for life-support power cuts” (The Age, 23/1) make me shudder. My son has Duchenne, the severest form of muscular dystrophy, and relies on a ventilator to stay alive. Over recent years, several people with muscular dystrophy have lost their lives to mis-managed power outages. [...]

By |2019-01-23T16:02:25+00:00January 23rd, 2019|Media|0 Comments

Media & News Articles

Media & News Articles News and stories for people affected by MD, carers and the general public. Media and News Articles - 2019 Response to ‘fines for life-support power cuts’ https://www.mda.org.au/2019/01/23/response-to-fines-for-life-support-power-cuts/   MDA the original lifeline for people with Muscular Dystrophy https://www.mda.org.au/2019/01/18/mda-the-original-lifeline-for-people-with-muscular-dystrophy/?fbclid=IwAR2owLjf43NClFt4mhg7mGT_thcraM7tLgUTfQJcw8922jzKywrhqFizzEA   Grandmother’s Italian mercy mission to help kids with rare genetic disorder https://www.sbs.com.au/news/grandmother-s-italian-mercy-mission-to-help-kids-with-rare-genetic-disorder?fbclid=IwAR0oBAbJwFC1hvXWa-YlxcR9Kg1kjMxtl-w_MBoQTNFmtbtC6OyaKT7P4Ac [...]

By |2019-01-23T13:45:50+00:00January 9th, 2019|Comments Off on Media & News Articles

Media Centre

MDA Media Centre Information and resources for journalists and media representatives. Boris Blog Community Feedback From the Desk - Executive Director Media & News Articles Media Enquiry Centre Media FAQ

By |2019-01-22T13:30:43+00:00December 22nd, 2018|Comments Off on Media Centre

Australia Post – we deliver. Sometimes…

Australia Post – we deliver. Sometimes... I read a few months ago that there were more than 1.1 million complaints to Australia Post in 2016-2017 and that figure was actually down by 30% over the last previous two years.  Apparently the drop did not indicate an improvement in customer service. This implies that people probably [...]

By |2018-10-16T11:00:39+00:00October 16th, 2018|Boris M Struk, Media, news|0 Comments

Putting Lycra before Wheelchairs

Putting Lycra before Wheelchairs Yesterday, I learned that in the Greens world there are no disabled people. No small feat considering that 1 in 4 Australians has a form of disability. I am outraged at the lack of inclusion and total selfishness that the Greens Councillors are displaying. Our community needs more help getting around, [...]

By |2018-09-17T15:35:05+00:00September 14th, 2018|Boris M Struk, Media, news, policies|0 Comments

Super Dads’ Walk

Super Dads' Walk No. 7 Founder of the Super Dads' Walk, Brett Bugeja, dropped into MDA HQ to present MDA's Executive Director, Boris M Struk, with a cheque for the funds raised from the seventh Super Dads' Walk. Over 130 Super Dads raised $30,000 and more than $180,000 since inception. What an incredible effort! Thank [...]

By |2018-06-13T16:57:12+00:00June 13th, 2018|ambassador, ChallengeMD, Event, fundraising, news|0 Comments