research

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Victorian Muscle Network Symposium

Victorian Muscle Network Symposium l-r - Prof Peter Currie, Prof Andrea Maier, Boris M Struk, Prof Gordon Lynch & Prof Kathryn North The Inaugural Victorian Muscle Network Symposium was held at Bio21 yesterday (19th June 2018) prior to the Annual Meeting of the International Society for Stem Cell Research (ISSCR). International speakers presenting included Prof [...]

By | 2018-06-20T23:18:58+00:00 June 20th, 2018|Boris M Struk, presentation, research, trials|0 Comments

MDA’s $1,000,000 Making a Difference

MDA Support of “Muscle Clinic” at RCH exceeds $1,000,000 creating world’s first dedicated multi-disciplinary Clinic Sometimes we need a reminder to realise just how far Muscular Dystrophy Australia’s support of the MD Community extends. The relationship between the MDA and RCH goes back some 26 years, when MDA was funding a dedicated MD Social Worker [...]

By | 2018-06-01T03:49:05+00:00 September 13th, 2017|about, information, news, research, Support Services, trials|0 Comments

Looking Back and Moving Forward

Launch of National Duchenne Muscular Dystrophy Register On Monday November 15th 2010, the Director General of Health launched the Duchenne Muscular Dystrophy (DMD) Registry. Patient registries are infrastructure that supports clinical and translational research. The DMD registry was created in response to developments in genetic technology and in particular clinical trials currently being planned, that [...]

By | 2017-06-28T17:30:17+00:00 June 28th, 2017|disorders, information, news, research, trials|0 Comments

FDA Approves Drug for Treatment of DMD

Chantal Coles PhD NMDRC provides a Research Update... On September 19th last year the U.S Food and Drug Administration (FDA) approved the first drug for the treatment of Duchenne Muscular Dystrophy, called EXONDYS 51™. This drug, formally known as Eteplirsen, is a gene modifying agent that bypasses a stop codon of the dystrophin, forming a [...]

By | 2018-06-01T03:49:09+00:00 April 3rd, 2017|information, research, trials|0 Comments

Dr Jason White – Back in the Lab

Recently, Dr. Jason White, lead researcher at the National Muscular Dystrophy Research Centre (NDMRC) at the Murdoch Children’s Research Institute, returned from six months of research in Vancouver, Canada. The purpose of this trip was to learn new techniques for research into Muscular Dystrophy and ensure Australia is up-to-date with all research developments and breakthroughs [...]

By | 2017-03-29T15:42:12+00:00 March 29th, 2017|information, research|0 Comments

Muscle Clinic

Muscle Clinic A world-first initiative, the MDA funded (we have invested in excess of $1.5 million) clinic is an initiative in which we work alongside Neurologists and their team of specialist, all forming part of the medical team monitoring and caring for our clients. We work in conjunction with RCH team to provide the added [...]

By | 2018-06-12T12:26:27+00:00 October 24th, 2016|Comments Off on Muscle Clinic

Research News Summary 2013-15

Medical research is moving forward at a significant pace, offering hope for members of our community affected by muscular dystrophy and related neuromuscular conditions. This section will be regularly updated with the latest research news from the MDA-funded National Muscular Dystrophy Research Centre (NMDRC) and from laboratories and clinical trial centres around the globe. Alerts [...]

By | 2016-10-25T17:00:03+00:00 July 23rd, 2016|Comments Off on Research News Summary 2013-15

Duchenne MD research news update 2015

There have been several developments in the past month with regard to the development of treatments for Duchenne MD. This includes two “firsts” for Duchenne MD – the first successful phase 3 clinical trial and the first New Drug Application to the US regulatory authorities (the FDA). In addition, a clinical trial of a gene [...]

By | 2016-10-25T16:54:21+00:00 July 23rd, 2016|Comments Off on Duchenne MD research news update 2015