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FDA Approves Drug for Treatment of DMD

By | April 3rd, 2017|information, research, trials|

Chantal Coles PhD NMDRC provides a Research Update... On September 19th last year the U.S Food and Drug Administration (FDA) approved the first [...]

Dr Jason White – Back in the Lab

By | March 29th, 2017|information, research|

Recently, Dr. Jason White, lead researcher at the National Muscular Dystrophy Research Centre (NDMRC) at the Murdoch Children’s Research Institute, returned from six [...]

Muscle Clinic

By | October 24th, 2016|

Muscle Clinic A world-first initiative, the MDA funded (we have invested in excess of $1.5 million) clinic is an initiative in which we [...]

Duchenne MD research news update 2015

By | July 23rd, 2016|

There have been several developments in the past month with regard to the development of treatments for Duchenne MD. This includes two “firsts” [...]

Diabetes Research…

By | July 23rd, 2016|

may help autoimmune muscle diseases Exciting new research may lead to the development of treatments for autoimmune disease which is good news for [...]

IVF technique helps family with MD

By | July 23rd, 2016|

The first baby has been born in Europe as the result of a new IVF procedure that checks embryos for genetic disorders. The [...]

MDA Neuromuscular Clinic

By | July 23rd, 2016|

The team @ RCH have been extremely busy working on exciting new projects for neuromuscular patients. CINRG research: The Prednisone (high-dose vs daily) [...]

Research News Summary 2013-15

By | July 23rd, 2016|

Medical research is moving forward at a significant pace, offering hope for members of our community affected by muscular dystrophy and related neuromuscular [...]

Disappointing Research…

By | July 23rd, 2016|

exon skipping trial results released In a press release GlaxoSmithKline and Prosensa have said that the results of the phase 3 exon skipping [...]

Burnt sugar treatment for MD?

By | July 23rd, 2016|

Burnt sugar treatment for muscular dystrophy? You may have seen headlines on the internet about researchers testing a substance found in burnt sugar, [...]