respiratory

/Tag: respiratory

Respiratory & Ventilation

Respiratory & Ventilation Respiratory considerations in neuromuscular disorders particularly Duchenne MD and SMA form a significant part of caring for and providing the best possible outcome for the affected individual. The following links address several important considerations:

By | 2018-06-11T23:26:27+00:00 August 19th, 2016|Comments Off on Respiratory & Ventilation

Glossopharyngeal Breathing (GPB)

Glossopharyngeal Breathing (GPB) Air Stacking or "Frog Breathing" Both inspiratory and, indirectly, expiratory muscle function can be assisted by "air stacking", technically known as "glossopharyngeal breathing" (GPB). For individuals with weak inspiratory muscles and no ability to breathe on their own, GPB can provide normal lung ventilation and perfect safety throughout the day without using [...]

By | 2018-06-11T23:23:02+00:00 July 23rd, 2016|Comments Off on Glossopharyngeal Breathing (GPB)

Ventilation Factsheet

Ventilation Factsheet There are many different neuromuscular conditions in which weakness of the breathing muscles requires monitoring and treatment and may eventually need some form of mechanical ventilation.  In Duchenne muscular dystrophy most boys/young men will need to start using a ventilator in their late teens to early twenties. In some other conditions such as [...]

By | 2018-06-11T23:25:08+00:00 July 23rd, 2016|Comments Off on Ventilation Factsheet

Respiratory Care in MD

Respiratory care and ventilation There are many different neuromuscular conditions in which weakness of the breathing muscles requires monitoring and treatment and may eventually need some form of mechanical ventilation.  In Duchenne muscular dystrophy most boys/young men will need to start using a ventilator in their late teens to early twenties. In some other conditions [...]

By | 2018-06-01T03:47:58+00:00 July 23rd, 2016|Comments Off on Respiratory Care in MD

Study of problems during sleep in DMD

Study of problems during sleep in DMD Currently there are no accurate predictors of the need for a sleep study in children with DMD. Symptoms of breathing problems in DMD are slow to develop, and often are not noticed by the individual. Once symptoms of waking with a headache or being sleep during the day [...]

By | 2018-07-03T15:31:37+00:00 July 23rd, 2016|Comments Off on Study of problems during sleep in DMD

Translations – French – Respiratory Issues in DMD

PRISE EN CHARGE DE L'INSUFFISANCE RESPIRATOIRE DES ENFANTS ATTEINTS DE DYSTROPHIE MUSCULAIRE DE DUCHENNE ET D'AMYOTROPHIE SPINALE INFANTILE   Traduction : Dr Cécile Jaeger PREFACE Vous et votre enfant trouverez ici l'information concernant les aspects respiratoires (pulmonaires) des dystrophies musculaires. Ce propos résume la façon dont la maladie affecte les poumons, ainsi que les traitements [...]

By | 2018-07-04T13:07:25+00:00 July 23rd, 2016|Comments Off on Translations – French – Respiratory Issues in DMD

Scoliosis

Scoliosis NOTES FOR PARENTS OF MUSCLE AND NERVE DISORDER PATIENTS Introduction Scoliosis is the medical term for curvature of the spine. In diseases of the muscles and nerves, curvature of the spine occurs because the muscles on either side of the spine are weak. They are not working effectively to hold the spine straight. Once [...]

By | 2018-06-11T23:24:25+00:00 July 23rd, 2016|Comments Off on Scoliosis