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Spinal Muscular Atrophy (SMA) Research Update

By | November 17th, 2016|atrophies, research, trials|

Spinal Muscular Atrophy (SMA) Research update and treatment - AUSTRALIA A research update by Prof. Monique Ryan Director, Department of Neurology Group Leader, [...]

Muscle Clinic

By | October 24th, 2016|

Muscle Clinic A world-first initiative, the MDA funded (we have invested in excess of $1.5 million) clinic is an initiative in which we [...]

Duchenne MD research news update 2015

By | July 23rd, 2016|

There have been several developments in the past month with regard to the development of treatments for Duchenne MD. This includes two “firsts” [...]

Diabetes Research…

By | July 23rd, 2016|

may help autoimmune muscle diseases Exciting new research may lead to the development of treatments for autoimmune disease which is good news for [...]

MDA Neuromuscular Clinic

By | July 23rd, 2016|

The team @ RCH have been extremely busy working on exciting new projects for neuromuscular patients. CINRG research: The Prednisone (high-dose vs daily) [...]

Research News Summary 2013-15

By | July 23rd, 2016|

Medical research is moving forward at a significant pace, offering hope for members of our community affected by muscular dystrophy and related neuromuscular [...]

Disappointing Research…

By | July 23rd, 2016|

exon skipping trial results released In a press release GlaxoSmithKline and Prosensa have said that the results of the phase 3 exon skipping [...]

Burnt sugar treatment for MD?

By | July 23rd, 2016|

Burnt sugar treatment for muscular dystrophy? You may have seen headlines on the internet about researchers testing a substance found in burnt sugar, [...]

Clinical trial for Congenital MD

By | July 23rd, 2016|

Swiss pharmaceutical company Santhera has announced that it will soon start a clinical trial of a drug called omigapil in children with congenital [...]

Clinical trial DMD

By | July 23rd, 2016|

Duchenne muscular dystrophy Summit, a UK drug company, announced on the 9th December 2013 that a boy with Duchenne muscular dystrophy (DMD) had [...]