Meetings Dates Activities

Meetings Dates Activities The MDA or Meetings Dates Activities is produces on a monthly basis filled with the latest information relating to future Meetings, Dates of these and client support Activities. Meetings Dates Activities is mailed to more than 1,500 members of the MD Community and those in the community providing support to this Community. [...]

By |2018-11-23T16:13:01+00:00September 24th, 2016|Comments Off on Meetings Dates Activities

Duchenne MD research news update 2015

Duchenne MD research news update 2015 There have been several developments in the past month with regard to the development of treatments for Duchenne MD. This includes two “firsts” for Duchenne MD – the first successful phase 3 clinical trial and the first New Drug Application to the US regulatory authorities (the FDA). In addition, [...]

By |2018-07-02T14:49:23+00:00July 23rd, 2016|Comments Off on Duchenne MD research news update 2015

Research Update 2014 – DMD & Becker MD

Research Update 2014 – DMD & Becker MD We will be publishing summaries of the progress made this year towards treatments for muscular dystrophies and related neuromuscular conditions. First up are Duchenne and Becker MDs which are trailblazing the way forward. Utrophin drug moving forward Summit, a UK drug company, started a phase 1b clinical [...]

By |2018-07-03T12:28:06+00:00July 23rd, 2016|Comments Off on Research Update 2014 – DMD & Becker MD

Clinical trial for Congenital MD

Clinical trial for Congenital MD Swiss pharmaceutical company Santhera has announced that it will soon start a clinical trial of a drug called omigapil in children with congenital muscular dystrophy (CMD). The study (called CALLISTO) will take place in the USA and will assess the safety, tolerability and pharmacokinetics of omigapil. Pharmacokinetics involves measuring how [...]

By |2018-07-02T14:31:24+00:00July 23rd, 2016|Comments Off on Clinical trial for Congenital MD

EducationMD 2015

EducationMD builds a bond between educators and children with MD MDA National Centre 111 Boundary Road North Melbourne Friday, 8 May 2015, saw the Muscular Dystrophy Australia (MDA) Head Office in North Melbourne turn into a hive of activity when the annual EducationMD seminar brought together a group of more than 35 education and health [...]

By |2018-06-01T03:49:21+00:00May 8th, 2015|disorders, information, Media, news, research|0 Comments

InformationMD 2013 Seminar

InformationMD 2013 Seminar On Tuesday 29 October MDA hosted its annual InformationMD! Seminar at its Head Office in North Melbourne. The all-day event was a great success with the MDA Conference Room packed to capacity with attendees comprising members of the MD community, staff from schools and several service providers. InformationMD!is a comprehensive multidisciplinary seminar [...]

By |2018-06-01T03:49:22+00:00October 29th, 2013|Uncategorised|Comments Off on InformationMD 2013 Seminar

MDA’s Sponsorship of CINRG

MDA's Sponsorship of CINRG  The Cooperative International Neuromuscular Research Group, (CINRG), was formed in 1999 as the clinical research arm of the Duchenne Muscular Dystrophy Research Center (DMDRC) and the Research Center for Genetic Medicine at the Children’s National Medical Center (CNMC). The primary goal of the CINRG research program is to provide a continuum [...]

By |2018-06-01T03:49:31+00:00September 27th, 2007|disorders, research|0 Comments